SlideShow DES Media

A selection of press cuttings from around the world about the adverse effects of Diethylstilbestrol

DES Press Releases

DES Exclusive Report, UK - Independent on Sunday Front Cover

 

The FlickrDES Press Releasesphoto set features a selection of press cuttings from around the world in English and French about the adverse effects of Diethylstilbestrol, the synthetic oestrogen prescribed to millions of pregnant women around the world decades ago in the mistaken belief that it would reduce the risk of complications during pregnancy.

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DES and Breast Cancer

A breast cancer survivor, Jackie, reports on her DES journey

Jackie White is one of 53 women who is bringing the DES Breast Cancer lawsuit in Boston against the maker of the drug DES (diethylstilbestrol) prescribed to millions of women decades ago.

According to a large study, DES, the anti-miscarriage drug used in the USA until 1971 but also used in Australia and many European countries well after 1971, has been linked to health problems — including breast cancer, infertility, difficult pregnancies and early menopause — in the daughters and the granddaughters of women who took it.

The study suggests that one in 50 DES daughters had the chance of developing breast cancer due to their DES exposure.
Read more about DES and breast cancer risks.

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The DES Paper 40th Anniversary – Dr Arthur Herbst

The University of Chicago, 17 May 2011

Commemorating Arthur L Herbst and the 40th Anniversary of His Landmark DES Paper.

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The DES Story, Lessons Learned

National Cancer Institute, October 2011

Dr. Robert Hoover, director of NCI’s Epidemiology and Biostatistics Programme, discusses a new study of diethylstilbestrol (DES), a drug once prescribed to pregnant women. Dr. Hoover describes the history behind DES and the long-term health effects that are now known to be associated with prenatal exposure to the drug. A written article about the study appears in the NCI DES follow-up study.

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SlideShow DES Books

Not just public health books but real stories of a tragedy experienced by million of men and women…

DES Books

DES Voices

 

The FlickrDES Booksphoto set features front cover images of a selection of books and publications in English and French about the adverse effects of Diethylstilbestrol, the synthetic oestrogen prescribed to millions of pregnant women around the world decades ago in the mistaken belief that it would reduce the risk of complications during pregnancy.  Below is a short introduction presenting these books:

BOOKS AND PUBLICATIONS IN ENGLISH

books about diethylstilbestrol image

Toxic Bodies: Hormones Disruptors and the Legacy of DES – Author Nancy Langston, published in 2011

In this gripping exploration, Nancy Langston shows how these chemicals have penetrated into every aspect of our bodies and ecosystems, yet the U.S. government has largely failed to regulate them and has skillfully manipulated scientific uncertainty to delay regulation. Personally affected by endocrine disruptors, Langston argues that the FDA needs to institute proper regulation of these commonly produced synthetic chemicals.

AFSSAPS DES Report – Author French Agency for the Safety of Health Products (AFSSAPS), published in 2011

As a result of a survey conducted in 2010, AFSSAPS decided to publish a DES update aimed at DES exposed individuals and health professionals. The publication emphasizes the gynecologists and obstetricians’ crucial role in recognizing DES exposure, informing their patients about its consequences and referring them to specialists for adequate care and monitoring. It also highlights the crucial role of DES patients in handing down the “record” of their exposure to the next generations. The AFSSAPS report is available to download in English and French.

Origins, How the Nine Months Before Birth Shape the Rest of Our Lives – Author Annie Murphy, first published in 2010

The book’s most chilling section involves the tragic results of thalidomide and diethylstilbestrol (DES), two drugs from the 1950s that were “given to pregnant women in the belief that the fetus would be unaffected.” Ms. Paul reveals six decades later: “It is evidence of the evolving state of our knowledge that the mechanisms by which these substances do their damage are not completely clear, even now.”

DES Voices, From Anger to Action – Author Pat Val Cody, published in 2008.

“Take a new estrogen promoted by the pharmaceutical companies. Add doctors ready to believe in another miracle drug. Take post-World War II women desperate to have a baby after miscarrying. Continue prescription for years. The result is the tragedy experienced by million of DES-exposed mothers, daughters, and son – and perhaps grandchildren. This is the story of what they did about the drug disaster that changed their lives.”

DES Stories, Faces and Voices of People Exposed to Diethylstilbestrol – Author Margaret Lee Braun, Theo Colborn and Nancy M.Stuart, first published in 2001

A tribute to the millions of lives upended by exposure to DES, diethylstilbestrol, synthetic estrogen, toxic chemical, and carcinogenic prescription drug. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voice, what it’s like to be DES-exposed. Today the DES story continues to unfold as research brings new findings to light. DES Stories rings with daring honesty—and points to broader concerns about the effects of endocrine-disrupting chemicals.

To Do No Harm: DES and the Dilemmas of Modern Medicine – Authors Dr. Apfel and Dr. Fisher, first published in 1985

In this important book, Drs. Apfel and Fisher demonstrate how explosive technological advances, physicians’ unconscious fantasies of heroism, and the urging of patients, among other factors, combined to produce the DES disaster-a massive tragedy that could occur again in any area of medicine.

DES Diethylstilbestrol – New Perspectives – Author David A. Edelman, first published in 1986

“An important contribution to the understanding of the uses of DES by pregnant women and the risks associated with this use. It is the only book on this subject that provides a scientifically objective overview and should be read by all who are involved in the debate over the effects of in utero DES exposure, including those men and women who were unfortunately exposed to the drug” American Medical Writers Association, July 1987.

BOOKS AND PUBLICATIONS IN FRENCH

Distilbène: des Mots sur un Scandale – Auteurs Véronique Mahé, publié en 2011

On estime le nombre de victimes du DES à 360 000 en France. Préfacé par Marie Darrieussecq, marraine du Réseau D.E.S. France, ce livre donne la parole aux femmes et aux hommes – mères et pères, filles et fils, compagnons – qui vivent les douloureuses conséquences de ce scandale médical, pour faire entendre leur souffrance et leur colère

DES (Distilbène – Stilboestrol): Trois Générations Réalités Perspectives – Auteur Anne Levadou, publié en 2010

Book presented by the support group Réseau D.E.S. France presenting texts from speakers of the DES symposium organized in France in November 2010.

Moi, Stéphanie, fille Distilbène –  Auteur Stéphanie Chevallier, publié en 2010

Stéphanie Chevallier est présidente de l’association des “Filles DES”. Elle est aujourd’hui l’heureuse maman d’un petit garçon adopté au Vietnam et poursuit son combat au nom des victimes du Distilbène grâce à son important rayonnement médiatique (elle est apparue dans Libération, Le Monde, etc…). Ce livre est son histoire et son combat contre l’ignorance face au DES.

Le Distilbène Trente Ans Après – Auteur Bernard Blanc, publié en 2008

Cet ouvrage est le fruit de la collaboration de plusieurs experts reconnus pour leur compétence dans ce domaine. Il intéressera tous les gynécologues obstétriciens, les urologues, mais aussi les médecins de santé publique et les sages-femmes.

Saskia ou le deuil d’un bébé Distilbène – Auteur Anne-Marie Lof, publié en 2000

Ce livre est le récit poignant d’une mère qui, sans le savoir, attend un « bébé Distilbène », du nom de ce médicament que l’on a donné aux femmes contre les nausées. Or, les filles des mères « contaminées » ont une propension aux fausse-couches et à d’autres pathologies. A partir de ce drame, Anne-Françoise Lof écrit un récit poignant dont le point de départ est la « non-existence » de l’enfant qui n’étant pas né, ni déclaré civilement, est tout de même né, même s’il était mort, une vraie personne, avec un vrai deuil, un vrai enterrement, une vraie souffrance. Elle s’appelait Saskia.

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DES Daughter on Technorati

Technorati (with name coming from “Technology” and “Literati” – technological literature intelligence) is an Internet search engine for searching blogs and/or posts by tag or keyword. In addition to this, each of Technorati channels have a variety of feature columns that cover specific niches of the blogosphere and news.

DES Awareness on Technorati

Technorati image
DES on Technorati

Our two blogs have been accepted:

2011 DES Study Media Coverage

Covering DiEthylStilbestrol worldwide drug disaster

2011 DES study media coverage imageOver the past few days, there has been an unprecedented flurry of media attention on DES related health issues. This come after a long-awaited DES study was published on October 06th in the New England Journal of Medicine  (MEJM) which carefully documents elevated risk for women exposed to diethylstilbestrol (DES in short) for a host of medical problems including cancer, infertility, ectopic pregnancies, preterm labour, …. As yet, there has been no coverage from the UK press despite a call on UK journalists to make this information available to the public.

MEDIA COVERAGE IN ENGLISH

Banned pregnancy drug impacts fetal immune system – Jerusalem Post, Oct 12, 2011

DES prescribed to women in the 1940s, 1950s, and 1960s to prevent miscarriages, had serious, untoward effects in daughters of these women, including the development of a rare type of cancer of the uterus. There has been renewed interest in light of a recent report in the New England Journal of Medicine documenting lifelong health complications facing daughters of women given DES.

Diethylstilbestrol in utero affects immune system of the fetus – News Medical, Oct 11, 2011

Reproductive tissues are not the only targets of DES. The immune system is also known to be a target for estrogens. Dr. S. Ansar Ahmed, professor of immunology at Virginia Tech, led a National Institutes of Health study in the 1990s on how exposure to DES in utero affects the immune system later in life using a mouse model.

Suit Claims Drug Leads To Breast Cancer, Victim Speaks Out – 10TV.com, Oct 10, 2011

One woman spoke out on Monday after learning a drug she was given before she was born had life threatening consequences for her as an adult.

Risky pregnancy drug raised daughters’ cancer odds – News Channel 9 ABC, Oct 10, 2011

A drug that millions of pregnant women took decades ago to prevent miscarriage and complications has put their daughters at higher risk for breast cancer and other health problems that are showing up now, a new federal study finds.

Pregnancy drug used decades ago raises cancer risk in offspring: studySouth Asia Mail

A drug that millions of pregnant women took decades ago to prevent miscarriage and complications has put their daughters at higher risk for breast cancer and other health problems that are showing up now, a new U.S. federal study finds.

Anti-miscarriage drug victim backs campaignTheMaitlandMecury.com.au, Oct 10, 2011

A woman given the anti-miscarriage drug diethylstilbestrol supports a call for a government-backed education campaign to highlight the dangers of exposure to the medication

Podcast 133: Over 50 years later, DES’ adverse effects continue
Oct 8, 2011 – Joe Elia – Audio interview with Dr Hoover, author of the NEJM DES Study

In a follow-up to the DES drug disaster, researchers (including one of the authors of the original reports in the early 1970s) have examined reproductive health in a large cohort of women exposed to DES in utero.  Their results were published last week in the New England Journal of Medicine, and they show that the health effects apparently continue beyond the reproductive years

Study adds to furor over pregnancy drug linked to daughter’s ailmentsThe Daily.com, Karen Keller – Oct 7, 2011

The DES breast cancer lawsuit, together with a bombshell New England Journal of Medicine article published yesterday — which suggests that infertility is twice as common and that breast cancer risk is nearly doubled in “DES daughters” — has ushered in a new awareness of the drug after decades when its lingering effects went under the radar.

Women Exposed to Synthetic Estrogen Diethylstilbestrol (DES) in the Womb Face Increased Cancer Risk, Study Finds
Science Daily – Oct 6, 2011 Hayden Donnell

A large study of the daughters of women who had been given DES, the first synthetic form of estrogen, during pregnancy has found that exposure to the drug while in the womb (in utero) is associated with many reproductive problems and an increased risk of certain cancers and pre-cancerous conditions.

Women exposed to diethylstilbestrol in the womb face increased cancer risk – EurekAlert (press release) – ‎Oct 5, 2011‎

Beginning in 1940, diethylstilbestrol, known as DES, was used clinically to prevent certain complications of pregnancy. In the 1950s, clinical studies showed DES was ineffective for this purpose. In the late 1960s, an unusual occurrence of a rare

Women Exposed To Hormone In Utero Face Lifelong Health Problems – NPR (blog) – Richard Knox – ‎Oct 5, 2011‎

Back in the 1940s, ’50s and ’60s, doctors prescribed a hormone called diethylstilbestrol, or DES, to millions of pregnant women in the unfounded belief it could prevent miscarriages. Smack in the middle of this period, the deformed thalidomide babies

Synthetic estrogen use leads to health problems
New Zealand Herald

Diethylstilbestrol was prescribed in the mistaken belief it could reduce pregnancy complications, but the daughters of the women who took it are still living with its effects

Health Risks for Women Exposed to DES in Utero
Doctors Lounge – HealthDay News – ‎Oct 5, 2011‎

Women who were exposed in utero to diethylstilbestrol have a higher lifetime risk for several adverse health outcomes, according to a study published in the Oct. 6 issue of the New England Journal of Medicine.

DES Exposure Linked to Lifetime Risk of Adverse Outcomes
Family Practice News Digital Network – Mary Ann Moon – ‎Oct 5, 2011‎

In-utero exposure to diethylstilbestrol was associated with a high lifetime risk of a broad spectrum of adverse outcomes in a follow-up study of patients now in their 40s, 50s, and 60s, according to a report in the Oct. 6 issue of the New England

Effects of DES Exposure Follow Women for Decades
MedPage Today – Charles Bankhead – ‎Oct 5, 2011‎

Explain that the teratogenic effects of diethylstilbestrol have continued to exact a heavy toll throughout the lifetime of women who were exposed to the drug in utero. Point out that DES-exposed women

Pregnancy Drug is Causing Grown Daughters to Face Risk of Cancer, Infertility – AboutLawsuits.com

The daughters of women given diethylstilbestrol (DES), a drug commonly used decades ago to prevent miscarriages and birth defects, are showing high rates of breast cancer and infertility problems, according to recent research.

DES daughters (and bummmer, I’m one) have some raised health risks – Los Angeles Times – ‎Oct 5, 2011‎

Millions of women alive today were exposed to a chemical called DES – diethylstilbestrol – in their mother’s uterus. The chemical, an early synthetic estrogen, was administered to some pregnant women before 1971 to help reduce risk of miscarriages and

Prenatal exposure to synthetic estrogen ups cancer risk in daughters – TruthDive

Washington, Sept 06 (ANI): Daughters of women who took a synthetic estrogen called diethylstilbestrol (DES) while pregnant decades ago are now facing a greater chance of being infertile and developing cancer, according to a large study by the National

Pregnancy drug found to cause fertility woes, cancers
Vancouver Sun

The study in Thursday’s New England Journal of Medicine examines the daughters of females exposed in the womb to diethylstilbestrol (DES), which was prescribed in the mistaken belief it could reduce certain complications of pregnancy.

Anti-miscarriage drug DES causes multi-generational health problems – Macleans.ca

by macleans.ca on Thursday, October 6, 2011 12:56pm – 0 Comments DES (or diethylstilbestrol), an anti-miscarriage drug widely used between 1940 and 1970, has been linked to health problems—including breast cancer, infertility, difficult pregnancies and

“DES” increases women infertility and cancers
Empowered News

DES or diethylstilbestrol have been prescribed to pregnant women for the belief that it will reduce complications during pregnancy. The National Cancer Institute researchers and scientists have been following about 6500 women including those exposed to

Health Woes Still Strike Women Exposed to Banned Pregnancy Drug – U.S. News & World Report – ‎Oct 5, 2011‎

Women whose mothers were given the drug diethylstilbestrol (DES) during pregnancy are at increased risk for fertility problems and cancer as they age, new research shows. This study from the US National Cancer

DES cancer link sparks campaign call
Sydney Morning Herald – ‎Oct 5, 2011‎

A study published by the New England Journal of Medicine on Thursday found daughters of women who took diethylstilbestrol (DES) while pregnant face a greater chance of being infertile and developing a rare vaginal cancer.

DES linked to cancer, infertility
Sydney Morning Herald – ‎Oct 5, 2011‎

A study appearing in Thursday’s New England Journal of Medicine examines women exposed in the womb to diethylstilbestrol (DES), which was prescribed in the mistaken belief it could reduce certain complications of pregnancy. Researchers at the National

In Utero DES Exposure Hurt Daughters’ Health
CalorieLab Calorie Counter News – ‎Oct 5, 2011‎

A comprehensive study looking at the drug diethylstilbestrol (DES) that was widely used by pregnant women in Europe and the United States to prevent problems in pregnancy such as miscarriage and premature birth from the 1940s until the 1960s suggests

Fake Hormone For Pregnant Women Causes Real Cancer In Their Daughters – Jezebel

The Associated Press reports that the drug, an artificial form of estrogen called DES (diethylstilbestrol), was often prescribed to pregnant women in pill or cream form between 1940 and 1960. When it was discovered that the teenage daughters of women

DES Daughters: Banned Pregnancy Drug Linked to Infertility, Prematurity and Cancer – TIME – Bonnie Rochman

That drug was DES, or diethylstilbestrol, which was widely prescribed in the US beginning in 1940 to help stave off miscarriage — until 1971, when the US Food and Drug Administration decided that the drug doesn’t work and that it causes cancer.

Risky pregnancy drug raised daughters’ cancer odds
Coshocton Tribune

Diethylstilbestrol, or DES, widely was used in the United States, Europe and elsewhere from the 1940s through the 1960s to prevent miscarriage, premature birth, bleeding and other problems. Many companies made it as pills and creams.

Moms who took miscarriage drug DES have daughters with higher risk for breast … – New York Daily News

DES, or diethylstilbestrol, was widely used in the United States, Europe and elsewhere from the 1940s through the 1960s to prevent miscarriage, premature birth, bleeding and other problems. Many companies made and sold it as pills, creams and other

Prenatal exposure to synthetic estrogen ups cancer risk in daughters – BioScholar News

Daughters of women who took a synthetic estrogen called diethylstilbestrol (DES) while pregnant decades ago are now facing a greater chance of being infertile and developing cancer, according to a large study by the National Cancer Institute in the

Pregnancy drug raised daughters’cancer odds
Post-Tribune – Marilynn Marchione – ‎Oct 5, 2011‎

Risks for other health problems vary. DES, or diethylstilbestrol, was widely used in the United States, Europe and elsewhere from the 1940s through the 1960s to prevent miscarriage, premature birth, bleeding and other problems.

Pregnancy drug raised daughters’ cancer odds
Salt Lake Tribune – Marilynn Marchione – ‎Oct 5, 2011‎

AP A drug that millions of pregnant women took decades ago to prevent miscarriage and complications has put their daughters at higher risk for breast cancer and other health problems that are showing up now, a new federal study

Pregnancy Drug proving a risk for children – WREG

Millions of women in the 1940s, 50s, and 60s who wanted to make sure they had safe pregnancies, took a drug called DES. The women likely didn`t know it then, but that drug came with side effects that are surfacing 50 plus years later in their children.

Today’s Top Medical Stories for October 6, 2011
OzarksFirst.com – ‎Oct 6, 2011‎

Millions of women exposed to the first synthetic form of estrogen are at risk of cancer . A National Institutes of Health study followed daughters of pregnant women given synthetic estrogen called DES from the 1940’s to the 1970s.

Drugs women took years ago may affect daughters
WNDU-TV

A drug millions of pregnant women took decades ago may increase health risks among their daughters. An estimated four million Americans were exposed to DES, a synthetic estrogen prescribed to prevent miscarriages and pregnancy complications,

Risky pregnancy drug raised daughters’ cancer odds
KTUU – ‎Oct 5, 2011‎

A new federal study finds that a drug that millions of pregnant women took decades ago to prevent miscarriage and complications has put their daughters at higher risk for breast cancer. Cancer and other health problems are showing

Drug To Prevent Miscarriage Increases Odds for Breast Cancer
Heal Blog (blog) – ‎Oct 5, 2011

by Art Writ, October 6th, 2011 Decades ago, women have taken a certain drug that lessens the risk of miscarriage. However, just recently, researchers have found out that the complications and side effects of this drug has placed their daughters at

MEDIA COVERAGE IN FRENCH

L’exposition fœtale au Distilbène accroît les risques de certains cancers – Le Monde – ‎6 oct. 2011‎

Les femmes exposées dans le ventre de leur mère au Distilbène, premier œstrogène de synthèse utilisé dès 1940, souffrent de nombreux problèmes de reproduction et sont soumises à un net accroissement du risque de certains cancers, selon une vaste étude

Distilbène : de nouveaux risques de cancers identifiés
Magic Maman – ‎6 oct. 2011‎

Une étude menée par les chercheurs de l’Institut National du Cancer américain publiée aujourd’hui dans le New England Journal of Medecine révèle de nouveaux effets négatifs liés à l’exposition intra-utérine au distilbène. En cause : des risques accrus

Les femmes exposées au Distilbène au stade foetal ont plus de problèmes de santé – Maxisciences – ‎6 oct. 2011‎

Une étude menée par des chercheurs de l’Institut national américain du cancer (NCI) montre que des femmes exposées au stade fœtal au Distilbène, un œstrogène de synthèse, souffrent aujourd’hui de problèmes de reproduction et sont davantage sujettes à

Filles du Distilbène : un risque accru de cancers
Terrafemina – ‎6 oct. 2011‎

Les résultats d’une vaste étude publiée aujourd’hui dans le New England of Medicine révèlent que les femmes exposées au Distilbène dans le ventre de leur mère sont soumises à un risque accru de cancer. Entre 1948 et 1976, 200 000 femmes ont été

Reproductive tissues are not the only targets of DES. The immune system is also known to be a target for estrogens. Dr. S. Ansar Ahmed, professor of immunology at Virginia Tech, led a National Institutes of Health study in the 1990s on how exposure to DES in utero affects the immune system later in life using a mouse model.

More DES DiEthylStilbestrol Resources

SlideShow DES Drugs

Di-Ethyl Stilbestrol was sold under many names…

DES Drugs Information

STILBOESTROL Bottles

 

Di-Ethyl Stilbestrol was sold under many names including Distilbène®, Stilboestrol-Borne®, Benzestrol®, Chlorotrianisene®, Estrobene® and Estrosyn® to name just a few. Many companies manufactured and marketed this drug under more than 200 different brand names.

DES was not only sold generically under a multitude of brand names but also commonly administered in different shapes and forms: tablets, injections, vaginal suppositories and sometimes even as an ingredient in pregnancy vitamins.

In America alone there were 267 drug companies that made and distributed DES and other similar synthetic estrogens because it was un-patented and easily produced. Aggressive marketing pushed DES to also be used for more than 100 medical conditions.

No wonder most people who have been exposed to Diethylstilbestrol don’t even know about it! Check out our DES Drugs photo album on Flickr.

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DES Daughter on Blog Catalog

BC is a blogger only social network and blog directory. BlogCatalog purpose is to help bloggers connect, share ideas, and grow through group and general discussions. BC also provides a variety of tools, features, and widgets to help bloggers. Blog sites are listed by category and can also be searched. Five are selected as top weblogs, along with a spotlight weblog.

DES Awareness on BlogCatalog

Thanks to BC admins Theresa and Angie, our three blogs have been accepted into BlogCatalogBringing Bloggers and Readers Together“.

Find the Top Women's Health Blogs - BlogCatalog Blog Directory
Let’s hope that BC fantastic resource
for bloggers and blog readers alike will
help us spread the word about the DES
health issues even more.