Guilt, Anger and Fear

The anxiety one must feel when diagnosed with a condition that was thrust upon them

I leave in a constant state of fear” explains a 48 year-old DES daughter who recently took her DES story to court as part of a 53-woman civil law suit.  She was diagnosed with breast cancer two years ago and like all these women she was exposed to DES before birth. In this poignant video, she and her mother tell us about the guilt, anger and fear attached to this drug and how it is affecting their day to day lives.

Recent studies revealed that women exposed to Diethylstilbestrol Diethylstilbestrol DES on Facebook before birth are now facing a myriad of serious health risks starting in their 40s and 50s.

The women in this study were followed as part of the National Cancer Institutes (NCI)’s DES Follow-up Study, which began in 1992.

The cancer risks for exposed daughters, as well as sons, are continually being studied as they age to determine if they differ from an unexposed population.

In addition, researchers are studying possible health effects on the grandchildren of mothers who took DES Diethylstilbestrol DES Google+ Page icon during pregnancy, because some of the genetic changes caused by DES exposure in the womb may be inherited.

More DES DiEthylStilbestrol Resources

DES on Facebook

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One Billion active users…

Facebook reaches one Billion active users imageIn the U.S. an estimated 5 to 10 million persons were exposed to Diethylstilbestrol; 740,000 in Australia, 300,000 in the UK, 160,000 in France and many more as DES was also prescribed in other countries such as the Netherlands, Ireland, South America, … If we did not have to consider many other factors such as age groups, location, etc., we could almost say that 1% of Facebook users have been exposed to DES…  In today’s world of fast-paced communication, it does struck me that whilst so many people have been exposed yet very few people know about the DES drug tragedy. The good news is Facebook is changing this!

By offering a unique forum where DES daughters, sons, mothers and their family can connect and share their story, Facebook offers the opportunity to reach out to a wide audience of people thus spreading awareness of the damage this prescription drug and many others prescription drugs such as Thalidomide, Mediator, etc. have caused.

“I am so grateful to have found your Facebook page. I am a DES Daughter, diagnosed with CCA at the age of 17. I am celebrating my 42nd year of surviving this terrible cancer. (…) I pray each day for all those that have been affected or have to deal with issues that this travesty has caused. Thank you for providing a forum for education and support” – commented a DES daughter on my Facebook profile recently.

I’m glad more and more DES Action groups are using this platform to raise awareness about DES and help break the wall of silence around the DES health issues.

DES News via Facebook

Please find a list of Facebook groups and pages providing updates about the Diethylstilbestrol related issues as well as support for DES victims.

Spread the Word

Diethylstilbestrol, Journal of a DES Daughter on Facebook image  June 21st 2012 marked a Milestone in our efforts to raise awareness of the DES drug scandal and tragedy! Thank you for sharing our page Diethylstilbestrol DES on Facebook and for spreading DES awareness one step further !

More DES DiEthylStilbestrol Resources