Better UK Support, Treatment and Research for Millions of Patients with rare Diseases

UK Rare Diseases Strategy launched by Health Minister Lord Howe

Abstract:

Better support, treatment and research for millions of patients with rare diseases
The best place to find UK government information and services online

The UK’s first strategy to help build understanding of rare diseases and boost research to find effective treatments and therapies was launched by Health Minister Lord Howe today.

The UK Rare Diseases Strategy aims to ensure that none of the three million people in the UK who are affected by rare diseases are left behind.

For the first time, it sets out a UK-wide vision for building on our reputation as a world leader in rare disease research, including revolutionary genomic research to help transform diagnosis and treatment.

Key elements of the strategy include:

  • a clear personal care plan for every patient that brings together health and care services, with more support for them and their families
  • support for specialised clinical centres to offer the best care and support
  • better education and training for health and social care professionals to help ensure earlier diagnosis and access to treatment
  • promoting the UK as a world leader in research and development to improve the understanding and treatment of rare diseases
Sources
Is DES a rare disease? How much do you know about DES?

Author: DES Daughter

Activist, blogger and social media addict committed to shedding light on a global health scandal and dedicated to raise DES awareness.

2 thoughts on “Better UK Support, Treatment and Research for Millions of Patients with rare Diseases”

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