Ovarian Cancer: why did it take so long for some women to find out?

Some wowen were fobbed off with wrong diagnoses and devastating consequences

Why did it take so long for these women to learn they had cancer? They were fobbed off with wrong diagnoses, and the consequences have been devastatingFor years, ovarian cancer has been known as a silent killer.
The disease is often not detected until it has spread.

  • Lynn was told she has a weak pelvic floor.
    By the time she was diagnosed, the tumour was the size of a pineapple, and the cancer had spread.
  • Caz was told she had IBS for years. Angela’s ovarian cancer has spread to her intestines and liver – and she will continue with chemotherapy.
  • Angela was told she had an eating disorder. A different doctor picked up the fact her periods had stopped before she’d lost weight – and cancer was diagnosed and removed.
  • Sue was told she had allergies and a chest infection when she actually had ovarian cancer.

Read Why did it take so long for these women to learn they had cancer? They were fobbed off with wrong diagnoses, and the consequences have been devastating, by Cara Lee, 17 Feb 2014

Our Posts about Cancer – Ovarian Cancer – Women’s Health

Introducing the NHS Health Apps Library

Easily find safe and trusted apps to help you manage your health

In this video Dr Maureen Baker CBE, Clinical Director for Patient Safety, introduces the NHS Health Apps Library.

More info and Videos

Prescription Drugs Addiction and Pharma

The pharmaceutical industry does not create cures, they create customer$

Drugs addiction and pharma
Watch the Diaporama, and the Art photo set on Flickr.

All our posts about AEDs, big pharma, DESdoctors, drug money, drugsEx Pharma Rx Drug Pusher Confessions – Gwen Olsen, the FDA, medical representativesSSRIsthalidomide, valproate. See more comics.

On Flickr®

Increasing Number of Chemicals linked to NeuroDevelopmental Disorders in Children

Growing number of chemicals linked with brain disorders in kids

Growing number of chemicals linked with brain disorders in children
The official Twitter profile @Harvard_Law of Harvard Law School.

Toxic chemicals may be triggering the recent increases in neurodevelopmental disabilities among children—such as autism, attention-deficit hyperactivity disorder, and dyslexia—according to a new study from Harvard School of Public Health (HSPH) and Icahn School of Medicine at Mount Sinai. The researchers say a new global prevention strategy to control the use of these substances is urgently needed. ”

Harvard University Press Release:

More information:

The FDA evaluating Risk of Stroke, Heart Attack & Death with FDA-approved Testosterone Products

Doctors are the ones who need more education here…

AUDIENCE:
Cardiology, Urology, Family Practice

FDA evaluating risk of stroke, heart attack and death with FDA-approved testosterone products
Newer studies have prompted the FDA to ask for warnings on testosterone therapy and for doctors to educate their patients on possible increased risks of heart disease.

ISSUE:
FDA is investigating the risk of stroke, heart attack, and death in men taking FDA-approved testosterone products. We have been monitoring this risk and decided to reassess this safety issue based on the recent publication of two separate studies that each suggested an increased risk of cardiovascular events among groups of men prescribed testosterone therapy. FDA is providing this alert while it continues to evaluate the information from these studies and other available data. FDA will communicate final conclusions and recommendations when the evaluation is complete.

BACKGROUND:
Testosterone is a hormone essential to the development of male growth and masculine characteristics. Testosterone products are FDA-approved only for use in men who lack or have low testosterone levels in conjunction with an associated medical condition.

RECOMMENDATION:
At this time, FDA has not concluded that FDA-approved testosterone treatment increases the risk of stroke, heart attack, or death. Patients should not stop taking prescribed testosterone products without first discussing any questions or concerns with their health care professionals. Health care professionals should consider whether the benefits of FDA-approved testosterone treatment is likely to exceed the potential risks of treatment. The prescribing information in the drug labels of FDA-approved testosterone products should be followed.

Healthcare professionals and patients are encouraged to report adverse events or side effects related to the use of these products to the FDA’s MedWatch Safety Information and Adverse Event Reporting Program:

  • Complete and submit the report Online
  • Download form or call 1-800-332-1088 to request a reporting form, then complete and return to the address on the pre-addressed form, or submit by fax to 1-800-FDA-0178.

Sources and Studies:

  • FDA Safety Information ucm384225 01/31/2014
  • FDA Drug Safety Communication ucm383904 01/31/2014
  • PLOS One January 29, 2014 DOI: 10.1371/journal.pone.0085805
    Increased Risk of Non-Fatal Myocardial Infarction Following Testosterone Therapy Prescription in Men
  • JAMA. 1764051 2013;310(17):1829-1836. doi:10.1001/jama.2013.280386 Association of Testosterone Therapy With Mortality, Myocardial Infarction, and Stroke in Men With Low Testosterone Levels November 6, 2013
  • These newer studies have prompted some to ask for warnings on testosterone therapy and to educate their patients on possible increased risks of heart disease. Doctors are the ones who need more education here.” Testosterone Therapy Does Not Cause Heart Attacks, HuffingtonPost, by Jen Landa, M.D. 02/04/2014

We don’t need to talk about Cancer !?

Whilst cancer can be a difficult topic to address, particularly in some cultures and settings, dealing with the disease openly can improve outcomes at an individual, community and policy level

Debunk the Cancer Myths

Cancer Myth 1 We don't need to talk about cancer
Cancer Myth 1: get involved, download the poster, postcard and fact sheet.

Truth:

Whilst cancer can be a difficult topic to address, particularly in some cultures and settings, dealing with the disease openly can improve outcomes at an individual, community and policy level.

Find More Information:

On Flickr®

Le Distilbène et les médecins prescripteurs

Vidéo d’archives C Dans L’Air 2011,
Intervention de Marc Girard, spécialiste en pharmacovigilance

Les Français plus grands consommateurs d’antibiotiques!
Médecins prescripteurs du Distilbène DES responsables?

  • Vidéo par edgarddevaux, 11 Jul 2011.
  • C Dans L’Air. Médicaments: le grand inventaire.
    Intervention de Marc Girard, spécialiste en pharmacovigilance.
Le Distilbène DES, en savoir plus

The Healthcare Hashtag Project

An awesome, very useful Twitter tool…

Why the Healthcare Hashtag Project?
Learn, engage and contribute to the Healthcare Hashtag Project

Objective:The goal of the Healthcare Hashtag Project by @symplur is to make the use of healthcare social media and Twitter more accessible for the healthcare community as a whole. By lowering the learning curve of Twitter with a database of relevant hashtags to follow, Symplur hope to help new and existing users alike to find the conversations that are of interest and importance.

Why the Healthcare Hashtag Project?

  • DISCOVER WHERE THE HEALTHCARE CONVERSATIONS ARE TAKING PLACE
  • DISCOVER WHO TO FOLLOW WITHIN YOUR SPECIALTY OR DISEASE
  • DISCOVER THE BEST FROM CONFERENCES IN REAL-TIME OR IN ARCHIVE
DiEthilStilbestrol hashtags
#diethylstilbestrol hashtag influencers and engagers

What can you find?

Contribute to The Healthcare Hashtag Project:

  1. Authenticate with Twitter
  2. Select Hashtag Type
  3. Enter Information and Submit

La face cachée des médicaments

La dérive du système de santé français

La face cachée des médicaments, par @nicole_delepine sur Flickr
La dérive du système de santé français, orienté par les lobbies pharmaceutiques.

Les scandales successifs du Distilbène, du Vioxx ou du Mediator, retirés très tardivement du marché, ne sont pas arrivés par hasard. La «chaîne du médicament» de la recherche pré- clinique aux essais thérapeutiques en passant par l’autorisation de mise sur le marché (AMM), la fixation des prix, le taux de remboursement et la surveillance post-AMM souffre d’innombrables dysfonctionnements.
Désormais les firmes pharmaceutiques contrôlent presque tout, et la pression populaire, instrumentalisée par la propagande publicitaire, a conduit à une accélération du processus de commercialisation. Le médicament est devenu une marchandise qui obéit essentiellement à l’économie de marché.

Nicole Delépine dresse ici un tableau sans complaisance de la dérive du système de santé français, orienté par les lobbies pharmaceutiques. Elle tente de sensibiliser les patients aux dangers des médicaments et d’alarmer médias et politiques sur leur passivité.
Une analyse argumentée et courageuse qui propose des solutions pour sortir de ce cercle infernal et imposer une véritable démocratie sanitaire.

Nicole Delépine est responsable de l’unité d’oncologie pédiatrique de l’hôpital universitaire Raymond Poincaré à Garches. Fille de l’un des fondateurs de la Sécurité Sociale et thérapeute engagée, elle a récemment publié La face cachée des médicaments et Le cancer, un fléau qui rapporte. Les commentaires en ligne et les articles par Nicole Delépine.

Sur Flickr®

Le Distilbène DES, en savoir plus

Sodium Valproate: the Cost…

Learn more about sodium valproate AEDs side-effects

truth is what you intuitively believe to be so…
not what I tell you

  • Video by APESAC, Published on 14 Feb 2014
  • This film uses the failed fetal anti-convulsant litigation against a multinational pharmaceutical company to critique UK law, and medicine regulation. It further addresses the economic effects of this failed litigation, and questions decisions within government regarding spending cuts within the public sector—particularly the legal aid budget. Is austerity the answer? Do short-term savings result in long-term costs?

More info and Videos