DiEthylStilbestrol Gender Identity Controversy

“a very good possibility that DES is was caused me to be trans…”

Video published on 11 June 2016 by DES Daugther Network channel via Dion Lim 5/6/11pm weeknight anchor/reporter at WTSP/CBS .

It was a pill meant to prevent miscarriages…

Can a drug manipulate gender identity, cause people to be trans, asks Dion Lim?
Well, I know many DES sons who can confirm that yes, it did happen.

More DES DiEthylStilbestrol Resources

Doctors’ Prescriptions: a Shared Responsibility?

Is the act of issuing a prescription the culmination of a complex chain of decisions?

Two thirds of consultations with general practitioners end with the issuing of a prescription. The decision to prescribe is influenced by many factors, to do with the doctor, the patient, the doctor-patient interaction, and the wider social context, including the effects of advertising and the financial incentives and disincentives for all parties. Hardline advocates of rational drug use do not look kindly on variations in prescribing patterns that cannot be explained by purely clinical factors. The prescriber who allows the “Friday night penicillin” phenomenon to sway his or her clinical judgment tends to do so surreptitiously and with a guilty conscience.

But such behaviour is the rule rather than the exception. Several studies have shown that the prescribing behaviour of doctors is heavily influenced by their perceptions of the social background, beliefs, attitudes, and expectations of the patient, as well as the uncertainty of the diagnosis.

continue reading Pressure to prescribe, The BMJ, doi.org/10.1136/bmj.315.7121.1482, 06 December 1997.

The image shows the Distilbène drug prescribed in 1972, despite in 1971 the FDA declared DES was contraindicated for use in pregnancy. DES continued to be prescribed in France until 1977

Ageing w/o Children – AWOC Conference June 2016

Building Your Rainbow: Practical Inspiration for Later Life,
Woodbrooke, Birmingham

SUNDAY 26th JUNE: AWOC Sunday Supper

Supper + room package: £45 for AWOC members | £100 for non-members

MONDAY 27th JUNE: Conference Day (9am-4.30pm)

Building Your Rainbow: Practical Inspiration for Later Life

£55 inc. lunch | free for AWOC members

Click to Select Tickets

Morning Sessions: Inspiration

  • Creating a positive later life with Jane Ashcroft (Anchor Housing)
  • Revisiting and revitalising the dreams of youth with Patrick Shine (The Shaftesbury Society)
  • Staying connected across the generations with Patrick Thomson (Centre for Ageing Better)

Afternoon Sessions: Practicalities

  • How co-housing really works with Anna Kear (UK Co-Housing Association)
  • Getting the paperwork sorted – legal issues for later life with Andrew Roberson (McClure Solicitors)
  • Retirement villages and care with Nick Williams (MHA)
  • How to be involved in your local community and volunteering with Julie Apps (Age UK, Birmingham)

or download and complete the booking form
and email to awoc.conference@gmail.com

Speakers to include:

  • Dr Mervyn Eastman, Founding Member AWOC: Chair for the day
  • Patrick Shine, The Shaftesbury Society: What makes your heart sing?
  • Patrick Thomson, Centre for Ageing Better: Being prepared for later life
  • Kirsty Woodard Founder AWOC: What’s Next for AWOC?
  • Jane Ashcroft CBE, CEO Anchor Housing: Planning for a Later Life Without Children
  • Stephen Burke, United for All Ages: Connecting Generations
  • Anna Kear Executive Director UK Co-Housing network: How co-housing really works
  • Nick Williams: MHA
  • Andrew Robertson: Managing Director, McClure Solicitors: Legal issues for those ageing without children

Breakout discussions to include:

  • Revisiting my rainbow: What do I want my later life to be like?
  • Creating my rainbow: Planning a later life without children
  • Building my rainbow: What do I need to do to make my plan happen?
  • From dreams to reality: ‘My Pledge’: When I get back from the AWOC Conference I will…

Breakout facilitators to include:

  • Jody Day: Founder, Gateway Women, Board Member AWOC, Member of AWOC London Group
  • Kirsty Woodard: Founder, AWOC
  • Maria Hughes: Network Enabler, Ageing Better LGBT Hub, Birmingham LGBT
  • Julie Apps: AGE UK, Birmingham

A FANTASTIC LINEUP OF SPEAKERS & FACILITATORS INCLUDING:

Nick Williams: MHA
Nick joined MHA as Head of Marketing in October 2014. MHAs aim is to eliminate loneliness and isolation for older people by creating communities that care. He was previously Director of a strategic marketing and sales development consultancy specialising in the Financial Services and Mutual sectors following a range of Marketing and Sales leadership roles for a number of leading Life and Pension providers and Building Societies. Nick was also a trustee for the Ellen MacArthur Cancer Trust for 7 years. The charity takes young people between the ages of 8–24 sailing to help them regain their confidence on their way to recovery from cancer.

Anna Kear: Chief Executive UK Co-Housing network
Anna was appointed as Executive Director of the UK Co-Housing Network in February 2016. Prior to joining UKCN Anna was a development director for Aster Group for seven years and has worked in the field of housing since 1988 since leaving University. Anna lives in Bath in a Victorian terrace with shared garden space for food growing and keeping chickens. As well as being a keen gardener Anna loves to cook for friends, family and neighbours.

Patrick Shine: Retirement Transition Initiative, the Shaftesbury Society
Patrick Shine has 15 years’ experience in advising charities, social enterprises and entrepreneurs, with an emphasis on scaling strategies, leadership development and social investment. Patrick has active links with policymakers, think tanks and academics, focusing on how policy ideas can be made to work in practice.

Jane Ashcroft CBE: Chief Executive, Anchor
Jane joined Anchor in 1999. She is a Trustee of The Silverline, a helpline for older people, a Non-Executive Director of Dignity PLC and Vice Chair of Associated Retirement Community Operators, representing retirement providers. Jane is also a Board member of Care England, the largest representative body for providers of adult social care and a Board member of the National Housing Federation which represents housing associations in England. She was awarded a CBE in the 2013 New Year Honours for services to older people.

Patrick Thomson: Senior Programme Manager, the Centre for Ageing Better
The Centre for Ageing Better is an independent charitable foundation working to help everybody enjoy a good later life. Patrick oversaw Ageing Better’s first major piece of published research ‘Later Life in 2015’ and leads on Ageing Better’s programme on work and employment for over 50s. As a former member of the UK Government Social Research Unit he previously commissioned and managed projects for the Department for Work and Pensions’ ageing society strategy.

Stephen Burke: United for All Ages
Stephen Burke is Director of United for All Ages, a social enterprise that aims to create a stronger Britain and stronger communities by bringing older and younger people together. United for All Ages focuses on big social and economic issues that can be tackled by an all ages approach, uniting not dividing different generations.

Kirsty Woodard Staunton: Founder, AWOC
Kirsty runs AWOC on a day to day basis and has 20 years experience of working in the field of ageing. She began in 1994 running an advocacy and advice service for older people before becoming the manager of Well & Wise healthy living centre for older people in Camden. She went on to advise Age UK on social care policy and service development models. She has been a freelance consultant and trainer since 2007 working with third sector organisations. In 2014, she was an UnLTD award winner for manAGEing through sport, a social enterprise designed to tackle loneliness and social isolation in older men. Kirsty is married and childless.

Andrew Robertson: Managing Director, McClure Solicitors
Andrew Robertson, is a Solicitor with 45 years legal experience covering Court, Conveyancing, Estate Agency, Matrimonial and Probate. He is Managing Director of McClure Solicitors, a legal services company with 10 offices throughout the UK which specialises in Wills, Powers of Attorney, Family Protection Trusts, Estate Planning and Inheritance Tax solutions. The company is partnered with over 40 charities who recommend us for Estate Planning and it raises around £1.5m per month for charities. Lots of businesses also use McClure Solicitors, including members of the Institute of Professional Willwriters, Golden Charter and Financial Advisers. Andrew says “Getting a Will right is not as easy as some may think. You only do it once so it pays to get it right”.

Jody Day: Founder, Gateway Women
As well as being the Founder of Gateway Women, the global friendship and support network for childless-not-by-choice women, Jody is a Board Member at AWOC and part of the steering team for the London AWOC Group. Jody is the author of Living the Life Unexpected: 12 Weeks to Your Plan B for a Meaningful and Fulfiling Future Without Children (Bluebird/PanMacmillan 2016) now being translated for international editions. She is divorced, childless-not-by-choice, and lives in London with her cat, who is also single and childless.

Dr Mervyn Eastman: Founder, Change AGEnets, Board Member AWOC
Mervyn trained in Social Work (CQSW) in the early 70’s and has worked in all fields of social care, much of it specialising in issues, services and policies related to age and ageing. He Co-Founded and is now President of the Practitioner Alliance for Safeguarding Adults (founded 1997) and following retirement as a Director of Social Services for a North London Borough, became Director of the Government Programme, Better Government for Older People (BGOP) a post held until 2009. Change AGEnts Network (a Charitable Society for the Benefit of the Community and a form of Co-operative) was co-founded out of BGOP in 2009 and seeks to change how we think about Older People. Has authored numerous publications on a range of issues related to public services and Older People, and was the first person (back in 1984) outside the USA to publish a book on the then marginalised issue of Elder Abuse in the domestic setting.

or download and complete the booking form
and email to awoc.conference@gmail.com

Kids on the Frontline

How pesticides are undermining the health of rural children

Kids-on-the-Frontline book cover image
Read and download the full report, A Generation in Jeopardy, How pesticides are undermining our children’s health & intelligence, October 2012 Pesticide Action Network North America.

A little over 100 years ago, Congress enacted the first U.S. pesticide law. The Insecticide Act of 1910 put labeling guidelines in place to protect farmers from unscrupulous vendors attempting to sell pesticide products that didn’t perform as advertised.

To this day, we control pesticides through a system of registration and labeling, with a primary goal of getting products to market. The result? Each year, more than 680 million pounds of pesticides are applied to agricultural fields across the country. This 2007 figure—the most recent government estimates available—climbs to more than a billion when common non-agricultural pesticide uses are included.

We believe this is too much. Ever-stronger science shows that even at low levels of exposure, many of these chemicals are harmful to human health—and children’s developing minds and bodies are particularly vulnerable. It is also increasingly clear that alternative, less chemical-intensive approaches to farming are not only viable, but would strengthen the resilience of agricultural production.

Put simply, there is no need for our food and farming system to put our children’s health at risk from chemical exposure.

Report Overview

Executive Summary
1. Widespread Use & Exposure

2. Rural Children on the Frontline
3. Increasing Cancer Risk
4. Altering Brain Development
5. Four Farming States in Focus
6. Time for a Healthier Food System

Appendix A: Key Study Summaries
• Asthma & respiratory function
• Birth defects & birth outcomes
• Brain & nervous system harms
• Childhood cancer
• Diabetes & obesity
• Reproductive harms
Appendix B: Glossary of Key Terms
Appendix C: Top Pesticides Used
Appendix D: Online Resources

Read and download the full reportKids on the Frontline, How pesticides are undermining the health of rural children, May 2016 Pesticide Action Network North America.

Air pollution: the benefits of clean power far outweigh the costs

Analysis of Costs and Health Co-Benefits for a U.S. Power Plant Carbon Standard

Nearly all U.S. regions stand to gain economic benefits from power plant carbon standards that set moderately stringent emission targets and allow a high level of compliance flexibility.

Most U.S. counties could gain $1m in annual health benefits from a power plant carbon standard, Harvard T.H. Chan School of Public Health, Press Release June 7, 2016.

Researchers reports large national net benefits of approximately $33 billion per year for the power plant carbon standard in the study, based on estimated costs of $17 billion per year and projected benefits of $29 billion for a subset of health co-benefits, and $21 billion for climate benefits.

Abstract

An Analysis of Costs and Health Co-Benefits for a U.S. Power Plant Carbon Standard, PLOS one, doi.org/10.1371/journal.pone.0156308, June 7, 2016.

Reducing carbon dioxide (CO2) emissions from power plants can have important “co-benefits” for public health by reducing emissions of air pollutants.

Here, we examine the costs and health co-benefits, in monetary terms, for a policy that resembles the U.S. Environmental Protection Agency’s Clean Power Plan. We then examine the spatial distribution of the co-benefits and costs, and the implications of a range of cost assumptions in the implementation year of 2020.

Nationwide, the total health co-benefits were $29 billion 2010 USD (95% CI: $2.3 to $68 billion), and net co-benefits under our central cost case were $12 billion (95% CI: -$15 billion to $51 billion). Net co-benefits for this case in the implementation year were positive in 10 of the 14 regions studied. The results for our central case suggest that all but one region should experience positive net benefits within 5 years after implementation.

Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults

The AHAT tool has the potential to reduce barriers to healthcare and improve healthcare self-efficacy and patient-provider communication

Abstract

BACKGROUND
The healthcare system is ill-equipped to meet the needs of adults on the autism spectrum.

OBJECTIVE
Our goal was to use a community-based participatory research (CBPR) approach to develop and evaluate tools to facilitate the primary healthcare of autistic adults.

The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers, Journal of general internal medicine, NCBI PubMed PMID: 27271730, 2016 Jun 6.

DESIGN
Toolkit development included cognitive interviewing and test-retest reliability studies. Evaluation consisted of a mixed-methods, single-arm pre/post-intervention comparison.

PARTICIPANTS
A total of 259 autistic adults and 51 primary care providers (PCPs) residing in the United States.

INTERVENTIONS
The AASPIRE Healthcare toolkit includes the Autism Healthcare Accommodations Tool (AHAT) – a tool that allows patients to create a personalized accommodations report for their PCP – and general healthcare – and autism – related information, worksheets, checklists, and resources for patients and healthcare providers.

MAIN MEASURES
Satisfaction with patient-provider communication, healthcare self-efficacy, barriers to healthcare, and satisfaction with the toolkit’s usability and utility; responses to open-ended questions.

KEY RESULTS
Preliminary testing of the AHAT demonstrated strong content validity and adequate test-retest stability. Almost all patient participants (>94 %) felt that the AHAT and the toolkit were easy to use, important, and useful. In pre/post-intervention comparisons, the mean number of barriers decreased (from 4.07 to 2.82, p < 0.0001), healthcare self-efficacy increased (from 37.9 to 39.4, p = 0.02), and satisfaction with PCP communication improved (from 30.9 to 32.6, p = 0.03). Patients stated that the toolkit helped clarify their needs, enabled them to self-advocate and prepare for visits more effectively, and positively influenced provider behavior. Most of the PCPs surveyed read the AHAT (97 %), rated it as moderately or very useful (82 %), and would recommend it to other patients (87 %).

Respect the way I need to communicate with you: Healthcare experiences of adults on the autism spectrum, aaspire, April 16, 2015.

CONCLUSIONS
The CBPR process resulted in a reliable healthcare accommodation tool and a highly accessible healthcare toolkit. Patients and providers indicated that the tools positively impacted healthcare interactions. The toolkit has the potential to reduce barriers to healthcare and improve healthcare self-efficacy and patient-provider communication.

Is the FDA Too Slow in Recalling Dangerous Products? You bet it is…

Early Alert: The Food and Drug Administration Does Not Have an Efficient and Effective Food Recall Initiation Process

Abstract

FDA Is Too Slow in Recalling Dangerous Products, Report Finds, Time, 09 June, 2016.

The purpose of this memorandum is to alert you to a preliminary finding from our ongoing audit of the Food and Drug Administration (FDA) food recall program. One of the objectives of our audit is to determine whether FDA has an efficient and effective food recall initiation process that helps ensure the safety of the Nation’s food supply.

Early Alert: The Food and Drug Administration Does Not Have an Efficient and Effective Food Recall Initiation Process, Department of Health and Human Services, Office of Inspector General, June 8, 2016.

We found that FDA did not have an efficient and effective food recall initiation process that helps ensure the safety of the Nation’s food supply. Specifically, FDA did not have policies and procedures to ensure that firms or responsible parties (collectively referred to in this document as “firms”) initiated voluntary food recalls promptly. This issue is a significant matter and requires FDA’s immediate attention.

We suggest that FDA update its policies and procedures to instruct its recall staff to establish set time frames for

  1. FDA to request that firms voluntarily recall their products
  2. and firms to initiate voluntary food recalls.

Our audit is a followup of our June 2011 report, Review of the Food and Drug Administration’s Monitoring of Imported Food Recalls. In that audit, we found FDA’s food recall program was inadequate because FDA did not have the authority to require firms to recall certain foods and FDA did not always follow its own procedures. To help ensure the safety of the Nation’s food supply, we recommended that FDA consider our findings when implementing the FDA Food Safety Modernization Act (FSMA) and follow its own procedures for monitoring recalls. FDA agreed with our recommendations. “

For the record, despite what many tend to believe, the FDA never really banned DES : in 1971, the FDA issued a contraindication to the use of DES in pregnancy and required a warning in its labeling… not the same thing…

Diethylstilbestrol 1mg in Oil

6 ampoules 1 mg 1 cc, manufactured by Eli Lilly

DES was sold under many names including Distilbène®, Stilbetin®, Stilboestrol-Borne®, Benzestrol®, Chlorotrianisene®, Estrobene® and Estrosyn® to name just a few.

Many different companies manufactured and marketed this drug under more than 200 different brand names.

These 6 ampoules 1 mg 1 cc. – Diethylstilbestrol in oil – were manufactured by: Eli Lilly & Co, Indianapolis, USA.

DES Drugs Pictures
More DES DiEthylStilbestrol Resources

Cosmetics, pesticides and chemicals available to buy: are consumers misguided about their safety?

Systematic Review Methods for Advancing Chemical Risk Assessment

Consumers generally seem to believe that products available for purchase are proven to be safe, and that the government would prevent unsafe products from being sold to us. This is not true.

Products may contain ingredients with very limited safety testing or, for example, no data on reproductive effects from prenatal exposure.

Agencies should adopt systematic review methods to evaluate the toxicity of chemicals. The public could greatly benefit from this, in terms of health and simply from a consumer right-to-know perspective.

Dr Paula Johnson, leader of the California Safe Cosmetics Program at the California Department of Public Health. Cosmetic image by Conrad.

Despite accounting for the most highly cited papers in medicine, systematic review is not yet widely used in chemical risk assessment. Lessons from the field of medicine could help provide clearer answers to questions about chemical safety, according to researchers.

Read:

  • Are my cosmetics a health risk? Seeking straight answers to tricky questions, lancaster.ac.uk, 7 June 2016.
  • Scientific controversy? Systematic review can help, elsevier, June 2, 2016.
  • Systematic Review Methods for Advancing Chemical Risk Assessment, journals.elsevier.

How women are being misled about the success rates of IVF and fertility treatments

Some people are getting IVF who shouldn’t be getting it

The Baby Business – Four Corners, May 31, 2016.

An Australian documentary has claimed that women over 40 are being misled about their chances of conceiving via IVF treatment when using their own eggs.

An investigation by the current affairs documentary Four Corners, on ABC, explained that chances of having a live birth per cycle following IVF treatment using their own fresh eggs were:

  • almost 6% for women aged 41-42 years old,
  • reduced to just under 3% for women aged 43–44 years old,
  • limited to a mere 1% for women over the age of 45.

More Information