Dr Jules Black Radio interview

In the post ” DES National Public Education Campaigns “, you can listen to the short radio interview featuring Carol Devine, founder and coordinator of DES Action Australia (NSW), and Dr Jules Black, Queensland Gyneocologist and sexuality expert, about the silence around the DES issue and the difficulties to push for a much needed Australian DES National Public Education Campaign 10 years after the USA first DES national campaign launched in 2001.
In Australia it is estimated that 740,000 people have been exposed to DES diethylstilbestrol, yet no such campaign has been held.
These people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.

A quoi sert le Registre Remera ?

Emmanuelle a travaillé sur le cas du distilbène (DES) puisque 29 cas de bébés de troisième génération ont été recensés dans la région

Nous attendons que la décision de déqualification soit annuléeLa survie du registre Remera est remise en cause. Pourtant reconnu pour la qualité de son travail, le registre de la région Rhône-Alpes qui collecte des informations sur le lien entre expositions environnementales et malformations congénitales, a été déqualifié en novembre dernier. Emmanuelle Amar, la directrice, s’interroge sur les raisons profondes de cette décision du Conseil national des registres (CNR) sachant que d’autres registres moins performants ont vu leur qualification reconduite.

Emmanuelle a travaillé sur le cas du distilbène (DES) puisque 29 cas de bébés de troisième génération ont été recensés dans la région. Les effets transgénérationnels de ce médicament anti fausse-couche ont été démontrés par les professeurs Sultan et Slama qu’elle a rencontrés avec Sylvaine Cordier de l’Inserm. Lire l’ interview.

Le Distilbène DES, en savoir plus

Could we blame our Ancestors for Fertility Problems?

Industry likes to say that the risk isn’t so big or the exposures are not so high. But, in fact, these exposures can have far-reaching effects. Unfortunately, regulators are having difficulty even coming to sensible conclusions on direct effects, let alone transgenerational ones.

Why are they not drawing any lessons from the DES drug disaster ?!?!
Read Toxic Environmental Exposures Could Cause Reproductive Harm Across Generations, Study Suggests by Lynne Peeples


What makes us the way we are?

How the Nine Months Before Birth Shape the Rest of Our Lives

Origins, how the Nine Months before Birth shape the rest of our Lives... on Flickr

With the intimacy of a personal memoir and the sweep of a scientific revolution, Origins presents a stunning new vision of our beginnings that will change the way you think about yourself, your children, and human nature itself.

The book’s most chilling section involves the tragic results of thalidomide and diethylstilbestrol (DES), two drugs from the 1950s that were “given to pregnant women in the belief that the fetus would be unaffected.”

Ms. Paul reveals six decades later:

It is evidence of the evolving state of our knowledge that the mechanisms by which these substances do their damage are not completely clear, even now.

More DES DiEthylStilbestrol Resources

The Tutu Project™ @TheTutuProject

Support the fund raising efforts of The Carey Foundation for women with breast cancer

The Tutu Project™ @TheTutuProject
The Tutu Project™ @TheTutuProject

The mission of The Tutu Project™ is to support the fund raising efforts of The Carey Foundation for women with breast cancer. Bob strives to bring laughter and understanding to a community that has endured far too much.

Women exposed to diethylstilbestrol are 82% more likely to develop breast cancer after age 40.

More DES DiEthylStilbestrol Resources

Pregnant? Here’s more to worry about…

Bisphenol A, Cigarette smoke, Morning sickness and Alcohol

Pregnant? Here's more to worry about

Pregnancy may be the mother of all guilt trips. But that anxiety doesn’t necessarily end with the birth of a healthy child. Researchers are finding that in utero exposures could be linked with behavioral or emotional problems in young children and increased cancer risk and other problems later in life.

For example exposure to artificial estrogens such as BPA and Diethylstilbestrol ( DES ) can change the way the fetus responds to estrogen later in life and may be associated with breast cancer.

Know your Breast Cancer Risks

Breast Cancer Risk for DES Daughters is Twice Higher

Doctors have tools to help estimate a woman’s personal risk, but women who get breast cancer sometimes have no known risk factors besides age. Many women with one or more risk factors never get breast cancer. So it’s impossible to know who will actually get the disease.

Read Know your breast cancer risks, HerkimerTelegram, Oct 2011

DES exposure is one of many risks factors for breast cancer – Be aware of these risks factors and stay tuned via Diethylstilbestrol, Journal of a DES Daughter Diethylstilbestrol DES on Facebook

DES studies on cancer and breast cancer, screening.

Media Ripple Effect needed – from UK to OZ

A ripple effect to reach and activate Australian media is needed…
followed by the Australian “hunt for DES daughters”

DES Action Australia-NSW appeals to all DES affected Australians to contact Australian media, newspapers, radio etc right now to tell them about the attention in US and UK, and the US court victory for DES daughters diagnosed with breast cancer.

The noise made by Jaymi McCann’s report in the Independent on Sunday had been heard as far as in Australia. DES Daughters are crying out for media attention and help in all corners of the globe.

Thanks DES Exposure Australia!

More DES DiEthylStilbestrol Resources

These Moms rock!

Christine Nienstedt is a fairly typical mom. Her time is stretched thin between work and her kids’ soccer games — and navigating the array of toxic chemicals that fill her family’s world.

These moms rock! Way to go stroller brigade!
Read National Stroller Brigade: Moms Descend On Congress To Urge Toxic Chemical Reform on HuffPost