In the post ” DES National Public Education Campaigns “, you can listen to the short radio interview featuring Carol Devine, founder and coordinator of DES Action Australia (NSW), and Dr Jules Black, Queensland Gyneocologist and sexuality expert, about the silence around the DES issue and the difficulties to push for a much needed Australian DES National Public Education Campaign 10 years after the USA first DES national campaign launched in 2001. In Australia it is estimated that 740,000 people have been exposed to DES diethylstilbestrol, yet no such campaign has been held. These people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.
Emmanuelle a travaillé sur le cas du distilbène (DES) puisque 29 cas de bébés de troisième génération ont été recensés dans la région
La survie du registre Remera est remise en cause. Pourtant reconnu pour la qualité de son travail, le registre de la région Rhône-Alpes qui collecte des informations sur le lien entre expositions environnementales et malformations congénitales, a été déqualifié en novembre dernier. Emmanuelle Amar, la directrice, s’interroge sur les raisons profondes de cette décision du Conseil national des registres (CNR) sachant que d’autres registres moins performants ont vu leur qualification reconduite.
Emmanuelle a travaillé sur le cas du distilbène (DES) puisque 29 cas de bébés de troisième génération ont été recensés dans la région. Les effets transgénérationnels de ce médicament anti fausse-couche ont été démontrés par les professeurs Sultan et Slama qu’elle a rencontrés avec Sylvaine Cordier de l’Inserm. Lire l’ interview.
Industry likes to say that the risk isn’t so big or the exposures are not so high. But, in fact, these exposures can have far-reaching effects. Unfortunately, regulators are having difficulty even coming to sensible conclusions on direct effects, let alone transgenerational ones.
How the Nine Months Before Birth Shape the Rest of Our Lives
With the intimacy of a personal memoir and the sweep of a scientific revolution, Origins presents a stunning new vision of our beginnings that will change the way you think about yourself, your children, and human nature itself.
The book’s most chilling section involves the tragic results of thalidomide and diethylstilbestrol (DES), two drugs from the 1950s that were “given to pregnant women in the belief that the fetus would be unaffected.”
Ms. Paul reveals six decades later:
It is evidence of the evolving state of our knowledge that the mechanisms by which these substances do their damage are not completely clear, even now.
Bisphenol A, Cigarette smoke, Morning sickness and Alcohol
Pregnancy may be the mother of all guilt trips. But that anxiety doesn’t necessarily end with the birth of a healthy child. Researchers are finding that in utero exposures could be linked with behavioral or emotional problems in young children and increased cancer risk and other problems later in life.
For example exposure to artificial estrogens such as BPA and Diethylstilbestrol ( DES ) can change the way the fetus responds to estrogen later in life and may be associated with breast cancer.
Breast Cancer Risk for DES Daughters is Twice Higher
Doctors have tools to help estimate a woman’s personal risk, but women who get breast cancer sometimes have no known risk factors besides age. Many women with one or more risk factors never get breast cancer. So it’s impossible to know who will actually get the disease.
A ripple effect to reach and activate Australian media is needed… followed by the Australian “hunt for DES daughters”
DES Action Australia-NSW appeals to all DES affected Australians to contact Australian media, newspapers, radio etc right now to tell them about the attention in US and UK, and the US court victory for DES daughters diagnosed with breast cancer.