Thanks Paul for this article and for opening the discussion on the use of Empire Avenue to raise awareness about an issue. Measuring the success of our awareness campaign and social media strategy is a great challenge for us as it is for many non-profits and corporate organizations. First you have to determine what success means to you based on your goals and mission. For us Empire Avenue is just one element of our social media strategy. It definitely helps us achieve one of our campaign goals which is to reach out to people who have never heard of DES. But our reach goes far beyond the EAv community. Not only our content is increasingly shared and liked outside the DES community, it generates media attention. In January 2012, the Independent, one of the largest UK national newspaper with an average daily circulation at 83,600 +, contacted us for an interview. The story made the front page cover of their Sunday edition and the interview was picked up by many other national newspapers such as the Daily Mail online and offline. DES very rarely receives mainstream media attention so this was a massive success for us and all the forgotten DES victims in the UK. This interview had a snowball effect. Since then, we’ve given three interviews and provided quotes and a foreword to a novel soon to be published in the UK. As a team of two we may never achieve policy changes and increase funding for the DES cause. However, we can make sure DES is not forgotten and remains in the public eye at least until all generations affected by this drug are gone! Our strategy is to connect, contribute, collaborate, and ultimately impact society. We believe the collective voice of DES victims and those who are engaging on the DES issues on social media channels can bring about change. In order for people to care, they need to know. In order for governments to take action, they need to be pressured by the general public. So our mission is to gain support for the DES cause from the general public. We are taking on this challenge one step at a time!
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Patricia Ann Wilson has a BFA in Drawing and Painting, Degree in Commercial Art, and Montessori Teacher Training. Patricia apprenticed at Stone Press Editions as a fine art lithographer and worked with Jacob Lawrence. Patricia exhibits her Collage, Drawings, Watercolor, and Prints internationally. She brings the passion for being an artist to teaching art. See Patricia ” Barnacle Acrlic Collage, More Lost Children ” on Pinterest. Learn more reading ” SURVIVING DES, Dedication to a Lost Child “, Patricia’s response to being a DES baby.
In this Oct. 2009video on YouTube, Dr. Therese Bevers talks about new screening guidelines for cervical cancer. Women at increased risk have a higher chance of getting cervical cancer than women at average risk.
Women at increased risk include those who have:
History of cervical cancer or severe cervical dysplasia (pre-cancer)
Persistent Human Papilloma Virus (HPV) infection after age 30 (HPV testing not recommended in women younger than age 30)
An immune system that does not function properly
Been infected with Human Immunodeficiency Virus (HIV)
Guidelines from the American Cancer Society are that women 70 and older who have had three consecutive normal Pap smears and no abnormal results in the past 10 years may choose to stop Pap smears. Some women need to continue having Pap smears though … This includes women who received DES (diethylstilbestrol) during pregnancy … via FloridaToday
Thalidomide effects are visible at birth but DES acts like a time-bomb over 3 generations
Why do so few people know about DES and the damage its caused? DES seems to be in the shadows of thalidomide—so much so that it’s been referred to as the ‘silent thalidomide‘ in the press. The obvious difference between DES and thalidomide is that the effects of thalidomide are clearly visible at birth. DES acts more like a time-bomb … over three generations … yet few people know about DES … out of sight out of mind!
Age at natural Menopause in Women exposed to DiEthylStilbestrol in Utero
Women whose mothers took a common pregnancy drug are at risk of early menopause, research shows. A study of thousands of women revealed that those who were exposed to the ‘wonder drug’ DES in the womb were 50 per cent more likely to start the menopause early.
“Take a new estrogen promoted by the pharmaceutical companies. Add doctors ready to believe in another miracle drug. Take post-World War II women desperate to have a baby after miscarrying. Continue prescription for years. The result is the tragedy experienced by million of DES-exposed mothers, daughters, and son – and perhaps grandchildren. This is the story of what they did about the drug disaster that changed their lives.”
Retour à l’actualité du Distilbène, à l’occasion d’un congrès de gynécologie qui se tient à Paris. Ce médicament, indiqué dans les cas de grossesse difficile, provoque des malformations génitales chez les enfants des mères traitées.
Photo de comprimés de Distilbène.
Mère poussant landau dans jardin public.
Interview Mme Lascar, son bébé dans les bras, au sujet de sa grossesse difficile.
Reportage dans une famille dont les 4 enfants souffrent de malformations dues au Distilbène ; scène de famille ; interview de l’une des filles au sujet de ses craintes pour faire un enfant.
Entretien entre une gynéco et une patiente ; interview gynéco, Anne CABAU, au sujet des risques de malformations dus au Distilbène et de l’importance du dialogue mère-fille.
Brochure médicale éditée par le ministère au sujet de ce médicament.