DES DiEthylStilbestrol Resources (4)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
DES Cancer Link 40th Anniversary
Guest post from DES Daughter and WONDER DRUG screenwriter Caitlin McCarthy; DES cancer link 40th anniversary triggers a flurry of press coverage.

DES National Public Education Campaigns
Carol Devine radio interview on the silence around the DES issue and the difficulties to push for a DES National Education Campaign.

Can the Mediator scandal lead to justice for drug victims ?
Massive media coverage of Mediator drug scandal is parallel to the silence surrounding DES exposure but could lead to justice for drug victims.

Victory for a DES 3rd generation victim : the pharmaceutical company condemned
First 3rd generation DES Distilbène® court case. Justice is made for the victims Louis and his mother Helene. UCB Pharma is condemned.

Distilbène®: 20 Years of Legal Battle
First Distilbène® lawsuits, first victories for DES daughters, historical turning point and first victory for DES third generation against UCB Pharma.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (3)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Diethylstilbestrol DES

DES, Guilt, Fear, and other Emotions
Review of the emotions including anger, anxiety, fear, frustration and guilt felt by most diethylstilbestrol DES victims.

DES Activist outside USA
Carol Devine, Founder and Coordinator of DES Action Australia-NSW, highlights the difficulties for a DES activist to access information outside USA.

DES and Breast Cancer Risks
Are DES daughters at higher risk of Breast Cancer? What is the NHS approach in UK and what are the prevention measures?

Wanted: DES Aware Doctors
Please contact your local DES Action Group if you know a sensitive, aware doctor that you would recommend to DES victims.

DES (Diethylstilbestrol) Symposium May 2011
Find Location, Time, Speakers & Programme of May 2011 DES Symposium held in Boston U.S.A.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (2)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
My DES Daughter Journey – Introduction
The journey started with a miscarriage and an operation. Now my DES journey is taking a new start with my Diethylstilbestrol “Journal of a DES Daughter”.

My DES Daughter Journey – Doctors
I have been exposed to DES but doctors needed more evidence to accept that diethylstilboestrol had contributed to my miscarriage.

The FDA is lying by omission
M. Henderson (US FDA) and C. McCarthy (screenwriter) communication about the health benefits of limiting the use of DES diethylstilbestrol in pregnancy.

International Women’s Day March 2011
Attend Journal of a DES Daughter International Women’s Day event on Facebook. Celebrate the courage of women affected by diethylstilbestrol.

French study reveals more damaging DES side effects
Link between DES and mental illness issues revealed by a recent study conducted by M.O. Gobillard-Soyer, former director at the CNRS.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (1)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Diethylstilbestrol DES
Journal of a DES daughter on Di-Ethyl Stilbestrol® (or diethylstilboestrol in UK). Sources DES action groups, DES exposure, DES pregnancy & DES media information.

DES Exposure
Diethylstilbestrol exposure may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES exposure.

DES Side Effects
Diethylstilbestrol side effects may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES side effects.

DES Pregnancy
Diethylstilbestrol side effects are frightening, but here is a message of hope to all DES daughters living a DES pregnancy.

Distilbene® Drug
Despite warnings to discontinue using DES in pregnancy, Distilbène® continued to be prescribed to pregnant women in France until 1977.

More DES DiEthylStilbestrol Resources

YouTube DES Videos in French (2)

Liste de vidéos sur le Distilbène DES en français, sur YouTube

YouTube DiEthylStilboestrol’s Channel : Utérus en T
YouTube : 2010.11 “Diaporama Constance Lanxade de Champris, présenté dans “Le couffin de l’héritage”, La Schola Cantorum, Paris, 19 novembre 2010, Réseau DES France“.

YouTube DiEthylStilboestrol’s Channel : “vital désir” , la bande annonce
YouTube : 2010.10 “Florence, une jeune femme de 38 ans est victime d’une fausse-couche au 6ème moi de sa grossesse. Le résultat de son hystérogrpahie révèle une malformation. La cause serait le Ditalmide: un médicament sensé prévenir les fausses couches, interdit aux Etats-Unis dès 1971 et, en France, seulement 6 ans plus tard“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, un scandale médical toujours d’actualité
YouTube : 2010.06 “Le 19 novembre 2010 se tient au Sénat un colloque sur le Distilbène®, ce médicament prescrit jusqu’en 1977 aux femmes ayant des problèmes de fécondité et qui a provoqué des cancers et malformations génitales chez leurs descendants. Nous recevons le gynécologue Michel Tournaire, ancien chef de service de la maternité de l’hôpital Saint-Vincent-de-Paul à Paris“.

YouTube DiEthylStilboestrol’s Channel : Le Distilbène®
YouTube : 2010.06 “Le Distilbène®“.

YouTube DiEthylStilboestrol’s Channel : Scandale Distilbène®
YouTube : 2010.01 “Scandale Distilbène®“.

YouTube DiEthylStilboestrol’s Channel : Le combat de victimes du médicament “Distilbène®”
YouTube : 2009.11 “Jusqu’en 1977, les médecins en France ont prescrit massivement du Distilbène® aux femmes enceintes pour éviter les fausses couches. Ce médicament était en fait très dangereux pour les enfants nés de ces grossesses. Jeudi, la Cour de cassation doit se prononcer sur une affaire concernant deux femmes, exposées in utero au médicament, et atteintes de cancers. Des “filles Distilbène®témoignent“.

YouTube DiEthylStilboestrol’s Channel : Les “filles Distilbène®” remportent une victoire face aux labos
YouTube : 2009.11 “Les “Filles Distilbène®“, atteintes d’un cancer à cause d’une hormone de synthèse, ont remporté une victoire en cassation face aux laboratoires, qui devront désormais prouver que leur produit n’était pas en cause“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, colloque international
YouTube : 2009. “Quatre victimes du Distilbène® témoignent lors d’un colloque international et partagent ce qui motive leur combat“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, effets secondaires et victimes
YouTube : 1980. “Interview (fin des années 80) d’une famille victime des effets secondaires dévastateurs du Distilbène®“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, avis de médecins
YouTube : 1980. “Interview (début des années 80) montrant les positions de 2 médecins au sujet du Distilbène®“.

Le Distilbène DES, en savoir plus

YouTube DES Videos in French (1)

Liste de vidéos sur le Distilbène DES en français, sur YouTube

YouTube DiEthylStilboestrol’s Channel => All DES Videos in French
Vidéos en langue française sur le Distilbène® DES (grid view).

YouTube DiEthylStilboestrol’s Channel : Distilbène®, hormone de croissance: critique des médecins
2011.07 “C Dans L’air – médicaments : le grand inventaire“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(1)
2011.06 “Début du colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°1 de 6). Distilbène-Médiator: l’histoire se répète (Dr Irène Frachon). Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(2)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°2 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(3)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°3 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(4)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°4 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(5)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°5 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(6)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°6 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®: un petit-fils handicapé obtient réparation en appel
2011.06 “Le petit-fils d’une femme ayant pris du Distilbène® a obtenu jeudi 9 juin de la cour d’appel de Versailles la reconnaissance d’un lien entre ce médicament et son handicap et le versement d’1,7 million d’euros de dommages et intérêts, a indiqué son avocate, Me Martine Verdier“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, effets psychiatriques – Rapport Hhorages 2011
2011.06 “Rapport d’une étude française sur les effets psychiatriques potentiels du Distilbène®, publié par l’association Hhorages en mars 2011“.

Le Distilbène DES, en savoir plus

YouTube DES Videos in English

The story of the multi generations DiEthylStilbestrol tragedy in videos

YouTube DiEthylStilboestrol’s Channel – Arthur L Herbst, MD – 40th Anniversary of DES Paper
2011. “Commemorating Arthur L Herbst and the 40th Anniversary of His Landmark DES Paper“.

YouTube DiEthylStilboestrol’s Channel – WCVB-TV “Chronicle” Segment on DES Diethylstilbestrol
2011. “February 18, 2011–WCVB-TV Boston’s newsmagazine “Chronicle” interviewed longtime DES activist/DES historian Andrea Goldstein, DES Daughter and “Wonder Drug” screenwriter Caitlin McCarthy, and DES researcher Dr. Julie Palmer for its segment on DES (diethylstilbestrol)“.

YouTube DiEthylStilboestrol’s Channel – DES concerns: The next generation
2011. “DES has consequences for those who took it, their children and maybe their grandchildren“.

YouTube DiEthylStilboestrol’s Channel – Caitlin McCarthy of Wonder Drug at 2010 AOF Fest
2010. “Meet the incredibly talented Caitlin McCarthy, author of the fantastic screenplay WONDER DRUG from her Award Winning appearance at the 2010 AOF Festival in Pasadena CA 2010. The multi-award winning writer talks about her work in this interview“.

YouTube DiEthylStilboestrol’s Channel – Hearing DES Daughters
2010. “IES113Hearing DES DAUGHTERS“.

YouTube DiEthylStilboestrol’s Channel – New Cervical Cancer Screening Guidelines
2009. “Women at increased risk have a higher chance of getting cervical cancer than women at average risk. Women at increased risk include those who have: Diethylstilbestrol (DES) exposure before birth“.

YouTube DiEthylStilboestrol’s Channel – Question on Ectopic Pregnancies
2009. “AN ECTOPIC PREGNANCY IS SERIOUS: CONSULT YOUR DOCTOR. Answering the Question for DprJones“.

More DES DiEthylStilbestrol Resources

Flickr DES Photos Sets

Picture galleries available with social networking, chat, groups, and photo rating

flickr sets
Flickr DES Diethylstilbestrol’s Sets – Australia
DES Action Australia-NSW was established in 1995 by Carol Devine, DES daughter, DES activist, founder and coordinator of the Sydney based group.

Flickr DES Diethylstilbestrol’s Sets – Books
DES Diethylstilbestrol’s Sets – Books

Flickr DES Diethylstilbestrol’s Sets – DES Info Blog
DES Info is not an official organization or group. It was created by several DES Daughters as a way to proactively share information about DES.

Flickr DES Diethylstilbestrol’s Sets – Drugs
Diethylstilbestrol or DES was sold under many brand names including Distilbène®, Stilboestrol-Borne®, Benzestrol®, Chlorotrianisene®, Estrobene® and Estrosyn® to name just a few.

Flickr DES Diethylstilbestrol’s Sets – Events
Symposiums, colloques, seminars and other DES events from around the world.

Flickr DES Diethylstilbestrol’s Sets – France
The support group Réseau DES France was established in 1994. They’ve achieved many results and successes such a the right to longer maternity leave for DES pregnancies.

Flickr DES Diethylstilbestrol’s Sets – Media
DES media news. Press cuttings from around the world

Flickr DES Diethylstilbestrol’s Sets – Research
DES Diethylstilbestrol’s Sets – Research

Flickr – DES Diethylstilbestrol’s Sets – USA
DES Action USA is a non-profit organization whose mission is to identify, educate, provide support to, and advocate for DES-exposed individuals as well as educate health care professionals.

Why a new DES blog ?

To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness

image of a dandelion
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.

DES Daughter Network is the little sister of Diethylstilbestrol, Journal of a DES Daughter but focuses on social media and social networking. The purpose of this blog is to share the latest DES news and updates from around the world as and when they are published all under one “roof”, one social media platform. It features and displays the social networks where DES groups and myself have a social media presence to further raise awareness of the DES cause and connect the dots between existing organizations.

Why a new blog?

Around the world, thousands, maybe millions of people are totally unaware that they were exposed to diethylstilbestrol (or DES), a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.

How do you reach out to these people?  One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.

Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Twitter, Facebook, YouTube, Flickr are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.

To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.

The 4 “C’s of Social Media for the DES cause
Connect, Contribute, Collaborate, Change

  • Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.
  • Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.
  • Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.
  • Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.

Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In today’s fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.

More DES DiEthylStilbestrol Resources

Free DES Awareness Toolbar

Did you know that you can create a toolbar for your website / blog that includes all of your own content and most visited sites? I didn’t but my husband did so when I told him I was spending a lot of time logging-in to my DES blogs, facebook, twitter and other social media accounts and finding the websites I visit on a daily basis, he kindly said to me “no worries, leave it with me and I’ll sort something out for you”.

Get our toolbar !

I’m no expert but he is and as per magic and in no time he created a DES Awareness toolbar where I could easily in just one click have access to all my “DES stuff”. Many of you won’t need this but if like me you need to have access to all the great work DES advocates around the world are doing in just one click you may be interested in downloading and adding this Free DES Awareness Toolbar to your Bookmarks menu. Or you may decide to create your own customized toolbar. Here are some of the benefits:

Get our toolbar !  The Alexa Toolbar Creator allows you to build a custom toolbar to help you connect with your visitors and increase traffic to your site. You can choose from a selection of features to add, including your logo, site search, custom menus, links to popular content on your site, and social networking. Also, by including dynamic headlines from blogs or other RSS/Atom feeds, you can message your customers in real time, wherever they are on the web. You can create Alexa toolbars for Internet Explorer and Firefox.

How easy is it to create a toolbar? It is relatively easy, but it’s even easier to download the FREE and handy DES Awareness Toolbar we’ve created for you.

The DES Awareness Toolbar features:

  •  Menu button / drop down links to DES blogs / websites.
  •  RSS Feed button / drop down links to DES posts.
  •  Menu button / drop down links to DES on Facebook.
  •  Menu button / drop down links to DES on Twitter.
  •  Twitter Feed button / drop down links to DES tweets.
  •  Menu button /drop down links to DES on Flickr.
  •  Menu button / drop down links to DES on Google+.
  •  Menu button / drop down links to DES on Pinterest.
  •  Menubutton / drop down links to DES on Scoop.it.
  •  Menu button / drop down links to DES on YouTube.

After download, follow the instructions and it will install in seconds. Contact us if you need any assistance. We hope that you will find our DES Awareness toolbar useful as much as we do.