New Zealand link to USA Breast Cancer Trial over the DES Drug

A DES register was never been set up in NZ

New Zealand link to USA Breast Cancer Trial over the DES DrugProf Paul says during the 1980s she tried to publish research on the problem but her paper was rejected by three journals. She said:

We got the sense that publicity … was not actively sought – indeed the opposite – by doctors

Most health records from the time have since been destroyed, leaving the total number of DES-affected a mystery. Prof Paul said:

“It is a guess now”

Read NZ link to US legal fight over drug, 3news, 19 Jan 2012.

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“Silent Thalidomide” in the UK

Thousands of Mothers and Daughters at Cancer Risk from Pregnancy Drugs

pregnant woman imageTwenty eight comments have been left since this article was published last year. They make an interesting read even though I find some of them quite upsetting … Feel free to click on the arrows to rate these comments.

Read “Silent Thalidomide” in UK: Thousands of Mothers and their Daughters at Risk of Cancer from anti-miscarriage Drugs they took Decades ago”
on the DailyMail, 23 January 2012.

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Let’s all convince Eli Lilly to adequately deal with the Reality of their Disaster – Time for Actions

A Guest Post by Dom
DES husband and father of three DES Grand-Daughters

Please "sign" the petition, consider adding EAv hashtag + ticker as suggested if appropriateFollowing this week historic trial in Boston – see the Melnick sisters related posts – DES Daughter Patricia Royall is targeting the CEO of Eli Lilly with the petition: Eli Lilly – Fess Up on DES!
(if, like me, you are not used to “American slang”, *Fess Up* = Confess).

Why adding your name to the petition is important

Enough talks and awareness efforts, it’s now time for real actions

  • When DES Daughter Domino  and I started this crusade less than two years ago, our humble goal was to try to assemble the news from the spread action groups, and to inform the general public about a non-talked about, not-taken care of, and worldwide tragedy affecting millions…
  • The DES victims needs more research about third-generation side-effects. I wish to see real justice asking the responsible pharmaceutical companies to finance this adequately…
  • The world now needs all doctors to be fully informed about the current situation… for all DES victims to receive adequate care and prevention.
  • The world now needs the FDA to monitor properly what data is presented to them prior to accepting new drugs to be put on the market…
  • The world now needs the governments to sanction politicians who became corrupted, make sure that the health system in place is doing its job to protect their citizens with adequate control barriers in place for no other similar health tragedy to happen again…

Calling our Fans, Followers, and Social Media influencers I met via Empire Avenue

Please "sign" the petition, consider adding EAv hashtag + ticker as suggested if appropriate

  • Please “sign” the petition  – some celebrities already did – with option to leave it anonymous if you prefer…
  • This is an opportunity for any Empire Avenue “player” to show that we can look beyond the “game aspect” and that the EAv community can make a difference… consider adding #EAv + your (e)TickerName into your comment… see mine left (#254)  as an example
  • I really hope to see some of my Empire Avenue SuperStars friends like Art Jonak, Berrie Pelser, Michael Q Todd, Rami Kantari, Ryan Zeigler (to name just five of them) to please help spread the word

Let’s make this go viral and… thank you very much
dom

WONDER DRUG the (Movie) Script

Scientific Drama currently in Development, inspired by DES

WONDER DRUG scientific advisor P. Harry Jellinck, WONDER DRUG screenwriter Caitlin McCarthy, WONDER DRUG producer Alysia Reiner, and actor Steve Guttenberg at the 15th Annual Hamptons International Film Festival.

A scientific drama, currently in development.  is the winner and nominee in over 20 international film festival screenplay competitions and labs (including the prestigious Hamptons Screenwriters Lab as an Alfred P. Sloan Foundation script).
Set in Boston, Massachusetts, WONDER DRUG is inspired by the true story of the drug DES…  WONDER DRUG WebsiteTwitterFacebook .

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Do something good !

Take a minute to write a review of DES Action USA.

Take a minute to write a review of DES Action USA

Please take a minute to write a review of DES Action USA. They now have 80+ reviews, named 2012 Top Rated Organization.

Please help spread the word – or JustGive – thank you!

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IndyOnSunday Front Page

“Silent Thalidomide” the Secret Killer: Ten of thousands of British woment in pregnancy drug scare

The Independent on Sunday UK, front page, January 22, 2012

Your DES Daughter interview in 2012.
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Interview with June Stoyer

The Interview

The Journey

Read more about DES Daughter  Domino’s journey

Campaigns effectiveness and measurement

Following Greg Gazin‘s post “Social media “missions” extend reach for social causes“, Paul Steinbrueck asked few questions about our campaign effectiveness and measurement.

Here is DES Daughter  ‘s comment:

Thanks Paul for this article and for opening the discussion on the use of Empire Avenue to raise awareness about an issue. Measuring the success of our awareness campaign and social media strategy is a great challenge for us as it is for many non-profits and corporate organizations. First you have to determine what success means to you based on your goals and mission. For us Empire Avenue is just one element of our social media strategy. It definitely helps us achieve one of our campaign goals which is to reach out to people who have never heard of DES. But our reach goes far beyond the EAv community. Not only our content is increasingly shared and liked outside the DES community, it generates media attention. In January 2012, the Independent, one of the largest UK national newspaper with an average daily circulation at 83,600 +, contacted us for an interview. The story made the front page cover of their Sunday edition and the interview was picked up by many other national newspapers such as the Daily Mail online and offline. DES very rarely receives mainstream media attention so this was a massive success for us and all the forgotten DES victims in the UK. This interview had a snowball effect. Since then, we’ve given three interviews and provided quotes and a foreword to a novel soon to be published in the UK. As a team of two we may never achieve policy changes and increase funding for the DES cause. However, we can make sure DES is not forgotten and remains in the public eye at least until all generations affected by this drug are gone! Our strategy is to connect, contribute, collaborate, and ultimately impact society. We believe the collective voice of DES victims and those who are engaging on the DES issues on social media channels can bring about change. In order for people to care, they need to know. In order for governments to take action, they need to be pressured by the general public. So our mission is to gain support for the DES cause from the general public. We are taking on this challenge one step at a time!

Join now (e)DESdaughter 3,850+ shareholders on Empire Avenue and start investing today! it’s FUN & FREE! Empire Avenue

SlideShow DES Art

Selected pieces of Art as a response to DES exposure

Regina Holliday - DEStiny a jacket for @cascadia #TheWalkingGallery

DEStiny

Artist Regina Holliday is a medical advocate muralist. She is using paint and brushes to promote health reform and patient’s rights.

Images copyright TwitPic – All rights reserved. DEStiny a jacket for @cascadia #TheWalkingGallery by @ReginaHolliday.

Female Reproductive Histopathology

Artist Penny Oliver says:

My name is Penny Oliver and I am committed to creating artwork that will inspire and reinvigorate you in your practice of medicine. By interpreting and translating anatomic, histologic and diagnostic images, I seek to create art that is both beautiful to the layperson and meaningful to the medical professional. Contact me to see how your work and passion can be transformed into a stunning piece of original art.” – Diagnosis ART, Custom Paintings for the Medical Professional

Images copyright Diagnosis Art – All rights reserved.

Surviving DES

Artist Patricia Ann Wilson says:

The watercolors and drawings, Surviving DES are a response to being a DES baby. My mother was given a drug, diethylstilbestrol, when she was pregnant with me. I have health issues as the result. The women who were given this drug between the 1940’s through the late 1970’s were actually being experimented on by the drug companies. These paintings and drawings, are my positive response to a negative situation. My art is my catharsis.”

Images copyright Patricia Ann Wilson Studio – All rights reserved.

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