PIP Inquiry rejects DES Story

In summary, by its actions and inactions, the TGA has stymied the availability of data to the Department of Health and Ageing in relation to the magnitude of the DES problem in Australia

PIP Inquiry Rejects DES StoryGreat disappointment from Down Under! Australian Senate PIP Inquiry rejects DES story’s correlation to PIP breast implant scandal … This is tragic for PIP recipients and all other victims of drug/medical device disasters. Kudos to DES Activist Carol Devine for making a submission about the Therapeutic Goods Administration’s (TGA) mismanagement of the DES drug disaster and how this correlates to the TGA’s current handling of the PIP scandal. It’s so disheartening for DES Activists all over the world … What will it take for the DES story to be heard and its lessons to be learned …?????

Read PIP Inquiry Rejects DES Story.

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Hormone Replacement Therapy: The Wonder Drug for the ’90s?

The Advantages and the Disadvantages of HRT

HRT The Wonder Drug for the ’90s
Proceed with extra caution if you have been exposed to DES

What are your views about HRT?

Do you think the benefits of Hormone Replacement Therapy during menopause are worth the risks, known and unknown?
Is the treatment safe for DES-exposed women?

Read HRT The Wonder Drug for the ’90s
by Isabelle Trépanier and Marie Cocking, DES Action Canada

All our posts about Estrogen – HRT – Menopause.

Breast Milk Secrets that the FDA doesn’t want You to Know

Do The Infant Formulas Have The Right Type Of Fats?

Breast Milk Secrets that the FDA doesn’t want You to KnowNot DES related but a fascinating article! Formula milk, synthetic oestrogens (like DES), you name it, nature can’t be replicated and so true health can’t be mimicked! …

Read Breast Milk Secrets that the FDA doesn’t want You to Know

Lessons must be learned

Pips breast implant scandal: Regulator warned years earlier.

A Health Minister review saying that “Lessons must be learned” … I’ve heard that before yet lessons are not learned and history is repeating itself over, and over again …

Read Pips breast implant scandal: Regulator warned years earlier.
The Telegraph, 15 May 2012.

DES Breast Cancer Case moving forward

DES-breast cancer case can move forward, judge rules in Boston

Doctors need to know to give adequate care and ask the right questions to assess breast cancer risk in their patients; being a DES daughter is a big one,” said Caitlin McCarthy, a DES educator and activist who isn’t involved in the lawsuit.

Read DES-breast cancer case can move forward, judge rules in Boston,
Boston Globe 01.20.2012.

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Did not know you like Beer

An annual DES specific pelvic examination is required

Why men are not allowed to take messages A little humor to brighten up your day!

Also a great opportunity to remind us that routine Pap testing is not adequate for DES exposed individuals.

An annual DES specific pelvic examination is required. But “doctors know best” right?

More DES DiEthylStilbestrol Resources

Pregnant Women Beware

“Don’t worry, be happy” slogan could harm your baby

“Don’t worry, be happy” slogan could harm your baby DRUG BUST by Alan CasselsA “Must Read” article!

Drugs such as thalidomide or DES (diethylstilbestrol) were given to pregnant women with disastrous consequences and so downplaying those examples by claiming that we do things differently today seems a key strategy for drug companies

says Alan Cassels a drug policy researcher at the University of Victoria.

Read “Don’t worry, be happy” slogan could harm your baby – DRUG BUSTPregnant Women Beware ” by Alan Cassels.

More DES DiEthylStilbestrol Resources

Pregnancy Drug raises Cancer Concerns

Pregnancy Drug Diethylstilbestrol Raises Cancer Concerns

Pregnancy Drug Diethylstilbestrol Raises Cancer ConcernsIt makes me mad too that so few people have heard of DES! and so angry when people who should know like doctors and gynecologists don’t have a clue and make you feel as if it is all in your head !!!

Read ” Pregnancy Drug Diethylstilbestrol Raises Cancer Concerns ”
by Charles Benson

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DES Daughters, the Book

Embodied Knowledge and the Transformation of Women’s Health Politics

In DES Daughters, Susan Bell recounts the experiences of this generation of DES-victims. In moving, heartfelt narratives, she presents the voices of those women who developed cancer, those who were cancer-free but have concerns about becoming pregnant, and those who suffered other medical and/or reproductive difficulties.

What Bowdoin Books says

image of DES Daughters, the BookSusan Bell‘s book tells a story about women who attained legendary status in the annals of medicine. They were exposed prenatally to what was promoted as a benign and exciting new wonder drug prescribed to millions of American women to prevent miscarriage from the 1940s to the 1970s. This new reproductive technology—the synthetic estrogen DES— proved to be ineffective in preventing miscarriage, and in the long run it has had profound and damaging consequences for children, especially daughters of the women for whom it was prescribed (Dieckmann et al. 1953; Giusti, Iwamoto, and Hatch 1995). In 1971, medical scientists observed an association between prenatal exposure to DES and a rare form of vaginal cancer (clear cell adenocarcinoma) in women under age twenty; using available medical categories, they identified this synthetic estrogen as the first “transplacental carcinogen” (Herbst, Ulfelder, and Poskanzer 1971). “DES Daughters”, as these women are now called, are also at risk for poor reproductive outcomes, including ectopic pregnancy, miscarriage, premature birth, and stillbirth (Giusti, Iwamoto, and Hatch 1995). Almost forty years later, DES-related cancer remains rare, but reproductive tract problems—including menstrual irregularities, poor reproductive outcomes, and structural or cellular anomalies—are common among DES Daughters. ” Sources: Bowdoin Books

More DES DiEthylStilbestrol Resources

BPA Exposure

Pregnancy imageExposure to artificial estrogens such as BPA and DES can change the way the fetus responds to estrogen later in life and may be associated with breast cancer” says Dr. Hugh Taylor, director of the Yale Center for Reproductive Biology.

Read ” Pregnant? Here’s more to worry about