Heartbreaking story! Misdiagnosed Ectopic Pregnancy

Misdiagnosed Ectopic : Heartache for Moms

Baby Born Deformed After Misdiagnosed Ectopic PregnancyHeartbreaking story! ” Baby Born Deformed After Misdiagnosed Ectopic Pregnancy “. This tragedy doesn’t seem to be related to DES but we have to remember that DES Daughters have an elevated risk of ectopic pregnancy, up to three times the risk of unexposed women…

If you know that you have been exposed to DES and are trying for a baby, make sure you tell your doctor and demand proper DES pregnancy care and monitoring.

Read DES studies on fertility and pregnancy.

Women’s History Month Proclamation

DES and the White House

Women's History Month ProclamationJoin the team at DES Info in reminding the White House and President Obama that the DES Tragedy needs to be addressed and we are still awaiting an apology!
As long as governments don’t take responsibility and publicly acknowledge this tragedy not much will be done to provide proper care and fund research for the DES community…
It’s important to keep the pressure on and fight this battle on all levels.

More DES DiEthylStilbestrol Resources

The Tutu Project™ @TheTutuProject

Support the fund raising efforts of The Carey Foundation for women with breast cancer

The Tutu Project™ @TheTutuProject
The Tutu Project™ @TheTutuProject

The mission of The Tutu Project™ is to support the fund raising efforts of The Carey Foundation for women with breast cancer. Bob strives to bring laughter and understanding to a community that has endured far too much.

Women exposed to diethylstilbestrol are 82% more likely to develop breast cancer after age 40.

More DES DiEthylStilbestrol Resources

Pregnant? Here’s more to worry about…

Bisphenol A, Cigarette smoke, Morning sickness and Alcohol

Pregnant? Here's more to worry about

Pregnancy may be the mother of all guilt trips. But that anxiety doesn’t necessarily end with the birth of a healthy child. Researchers are finding that in utero exposures could be linked with behavioral or emotional problems in young children and increased cancer risk and other problems later in life.

For example exposure to artificial estrogens such as BPA and Diethylstilbestrol ( DES ) can change the way the fetus responds to estrogen later in life and may be associated with breast cancer.

Know your Breast Cancer Risks

Breast Cancer Risk for DES Daughters is Twice Higher

Doctors have tools to help estimate a woman’s personal risk, but women who get breast cancer sometimes have no known risk factors besides age. Many women with one or more risk factors never get breast cancer. So it’s impossible to know who will actually get the disease.

Read Know your breast cancer risks, HerkimerTelegram, Oct 2011

DES exposure is one of many risks factors for breast cancer – Be aware of these risks factors and stay tuned via Diethylstilbestrol, Journal of a DES Daughter Diethylstilbestrol DES on Facebook

DES studies on cancer and breast cancer, screening.

Cervical Cancer Screening Guidelines

Dr. Therese Bevers, 2009

In this Oct. 2009 video on YouTube, Dr. Therese Bevers talks about new screening guidelines for cervical cancer. Women at increased risk have a higher chance of getting cervical cancer than women at average risk.

Women at increased risk include those who have:

  • History of cervical cancer or severe cervical dysplasia (pre-cancer)
  • Persistent Human Papilloma Virus (HPV) infection after age 30 (HPV testing not recommended in women younger than age 30)
  • An immune system that does not function properly
  • Been infected with Human Immunodeficiency Virus (HIV)
  • Diethylstilbestrol DES exposure before birth

Find out more

Pap Tests

Guidelines from the American Cancer Society are that women 70 and older who have had three consecutive normal Pap smears and no abnormal results in the past 10 years may choose to stop Pap smears. Some women need to continue having Pap smears though … This includes women who received DES (diethylstilbestrol) during pregnancy … via FloridaToday

DES linked to an Early Menopause

Age at natural Menopause in Women exposed to DiEthylStilbestrol in Utero

Pregnancy drug linked to an early menopause
DES linked to an early Menopause

Women whose mothers took a common pregnancy drug are at risk of early menopause, research shows. A study of thousands of women revealed that those who were exposed to the ‘wonder drug’ DES in the womb were 50 per cent more likely to start the menopause early.

Read more: Pregnancy drug linked to an early menopause, by FIONA MACRAE, last updated 15 August 2006.

DES and Menopause – Studies

More DES DiEthylStilbestrol Resources

DES Diethylstilbestrol Awareness Video

Have you heard of DES ?

One of the first worldwide drug scandal is DES (Diethylstilbestrol) affecting millions of people in countries where the anti miscarriage drug was widely prescribed to pregnant women decades ago. You may have been exposed to DES without knowing it! The time bomb effects and associated health issues on three generations are still being ignored.

Thank you for sharing the video!

Spread the Word

Find out more and help spread DES awareness via:

More DES DiEthylStilbestrol Resources

NEW Global DES Health Survey gives a Voice to “Wonder Drug” Victims


DES Action Health History Survey

DES Action Australia-NSW Media Alert

Are you one of the 740,000 Australians at risk?

New global health survey gives a voice to those suffering effects of ‘wonder drug’ that devastated generations

Australians are being encouraged to take part in a landmark global health survey to help reveal the true impact of exposure to the anti-miscarriage drug, DES for DES Awareness Week (June 1 – 7). It is estimated up to 740,000 Australians are have been exposed to the drug, which was prescribed from 1940 – 1970 across the country.

“If you know, or even suspect that you, your mother or grandmother might have taken this drug – this is your chance to be part of a survey that will reveal what the real health impacts this drug has had on three generations of families,” says Carol Devine, DES Action Australia-NSW coordinator, herself a DES daughter.

The survey, by DES Action USA, will give Australians the opportunity to speak out about the health impact of their exposure, which includes cancer of the vagina, cervix or breast, birth complications and infertility.

Mrs Devine is hoping the survey will help answer many of the health questions plaguing the DES community.

“Our organisation has fielded hundreds of enquiries in response to DES Awareness Weeks from right across Australia and often we are asked if a particular health problem might be related to DES exposure and often the answer is – no one knows. By working with researchers in the USA we will be able to get some real answers, and know the proper healthcare to detect these conditions earlier and potentially save lives “says Devine.

Touted a “wonder drug” in its time, DES was prescribed to pregnant women between 1940 and 1971 (and sometimes beyond). It is now known to increase the risk of certain cancers and reproductive problems in those women prescribed DES and their children of that pregnancy.

Dr Jules Black, DES knowledgeable obstetrician and gynaecologist and medical spokesperson for the DES Action group in NSW, is urging women and men who may be DES exposed to be vigilant with their reproductive health – and take action.

“It is vital that people affected get the specialised health care they need. It is important that DES exposed women get the proper screenings to detect cancers early and women exposed to DES in the womb have “high risk” care for their pregnancies. Men exposed to DES in the womb, with increased risk of genital abnormalities, should do regular testicular self-checks and report anything unusual to a doctor, such as fertility or urogenital problems” he says.

June 15 is the deadline for this survey and Australians affected by DES can participate online at DES Action USA

There are many people affected by DES who may not be aware of the harm caused by DES and the health care they need. More information is available at DES Action Australia-NSW or by contacting them 02.98754820.

HEALTH CHECK LIST: If you tick ‘yes’ next to any of the following, ask your doctor about possible exposure to DES:

ü  Does your mother recall having previous miscarriages or being prescribed medications while pregnant? DES was most commonly prescribed to prevent miscarriage and for pregnancy complications such as bleeding. It was also known as “stilboestrol”.

ü  If unable to ask your mother, does your health history show a series of reproductive problems such as cancer, infertility, or miscarriages?

ü  Does your mother remember only being given “hormones” during pregnancy? It is worthwhile having a check-up, informing the doctor your mother was given hormones during pregnancy. Progesterone, another hormone, may have also been used to prevent miscarriage and research has shown no problems with this.

 -ENDS-

For more information, please contact:

DES Action Australia-NSW

DES Action USA