Team DES Action USA

Non-profit consumer org providing health information for DES-exposed individuals


The mission of DES Action USA is to identify, educate, provide support to, and advocate for DES-exposed individuals as well as educate health care professionals.

Company Overview

DES Action USADES Action USA is the only national, non-profit organization for those who were exposed to DES. They provide education, and advocate for continued research into the health concerns of DES Mothers, DES Daughters, DES Sons and now DES Grandchildren. They have about 2,000 members and hope you consider joining to support their work. Those of us in the DES community must take care of ourselves because no one else will do it for us!


An estimated 5-10 million Americans were exposed to the “anti-miscarriage” drug diethylstilbestrol (DES). It has tragically caused cancers, infertility and other health problems.

Contact info

Phone +1 800-337-9288

More DES DiEthylStilbestrol Resources

2 thoughts on “Team DES Action USA”

  1. someone please help me. I’ve sent emails to the National Cancer institute but have not heard from them. My 3rd generation daughter was born and suffers multiple genital and heart defects. We both want to know how to join any class action law suits, any research participation for us. I will say it is a relief to discovery the nature of our disorders however it doesn’t change how this has lead to the end of genetic line, and I will not experience being a grandmother. Sad but true.
    thanks \
    ariannah lego

    1. Hi Ariannah, thanks for using DES Daughter Network to seek help. The law firm Aaron M. Levine & Associates has 50 years of experience representing hundreds of DES daughters. You should contact them. They might be able to help you. If you’re in the USA, you should also contact DES Action USA. The only DES class action that we know of was in the Netherlands. We wish you all the best in your journey for justice.

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