Want to know more about the pregnancy drug DiEthylStilbestrol?
DES Cancer Link 40th Anniversary Guest post from DES Daughter and WONDER DRUG screenwriter Caitlin McCarthy; DES cancer link 40th anniversary triggers a flurry of press coverage.
DES National Public Education Campaigns Carol Devine radio interview on the silence around the DES issue and the difficulties to push for a DES National Education Campaign.
Distilbène®: 20 Years of Legal Battle First Distilbène® lawsuits, first victories for DES daughters, historical turning point and first victory for DES third generation against UCB Pharma.
DES, Guilt, Fear, and other Emotions Review of the emotions including anger, anxiety, fear, frustration and guilt felt by most diethylstilbestrol DES victims.
DES Activist outside USA Carol Devine, Founder and Coordinator of DES Action Australia-NSW, highlights the difficulties for a DES activist to access information outside USA.
DES and Breast Cancer Risks Are DES daughters at higher risk of Breast Cancer? What is the NHS approach in UK and what are the prevention measures?
Wanted: DES Aware Doctors Please contact your local DES Action Group if you know a sensitive, aware doctor that you would recommend to DES victims.
Want to know more about the pregnancy drug DiEthylStilbestrol?
My DES Daughter Journey – Introduction The journey started with a miscarriage and an operation. Now my DES journey is taking a new start with my Diethylstilbestrol “Journal of a DES Daughter”.
My DES Daughter Journey – Doctors I have been exposed to DES but doctors needed more evidence to accept that diethylstilboestrol had contributed to my miscarriage.
The FDA is lying by omission M. Henderson (US FDA) and C. McCarthy (screenwriter) communication about the health benefits of limiting the use of DES diethylstilbestrol in pregnancy.
International Women’s Day March 2011 Attend Journal of a DES Daughter International Women’s Day event on Facebook. Celebrate the courage of women affected by diethylstilbestrol.
Want to know more about the pregnancy drug DiEthylStilbestrol?
Diethylstilbestrol DES Journal of a DES daughter on Di-Ethyl Stilbestrol® (or diethylstilboestrol in UK). Sources DES action groups, DES exposure, DES pregnancy & DES media information.
DES Exposure Diethylstilbestrol exposure may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES exposure.
DES Side Effects Diethylstilbestrol side effects may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES side effects.
DES Pregnancy Diethylstilbestrol side effects are frightening, but here is a message of hope to all DES daughters living a DES pregnancy.
Distilbene® Drug Despite warnings to discontinue using DES in pregnancy, Distilbène® continued to be prescribed to pregnant women in France until 1977.
Flickr DES Diethylstilbestrol’s Sets – Drugs Diethylstilbestrol or DES was sold under many brand names including Distilbène®, Stilboestrol-Borne®, Benzestrol®, Chlorotrianisene®, Estrobene® and Estrosyn® to name just a few.
Flickr DES Diethylstilbestrol’s Sets – France The support group Réseau DES France was established in 1994. They’ve achieved many results and successes such a the right to longer maternity leave for DES pregnancies.
Flickr – DES Diethylstilbestrol’s Sets – USA DES Action USA is a non-profit organization whose mission is to identify, educate, provide support to, and advocate for DES-exposed individuals as well as educate health care professionals.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.
DES Daughter Network is the little sister of Diethylstilbestrol, Journal of a DES Daughter but focuses on social media and social networking. The purpose of this blog is to share the latest DES news and updates from around the world as and when they are published all under one “roof”, one social media platform. It features and displays the social networks where DES groups and myself have a social media presence to further raise awareness of the DES cause and connect the dots between existing organizations.
Why a new blog?
Around the world, thousands, maybe millions of people are totally unaware that they were exposed to diethylstilbestrol (or DES), a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.
How do you reach out to these people? One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.
Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Twitter, Facebook, YouTube, Flickr are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.
The 4 “C’s of Social Media for the DES cause Connect, Contribute, Collaborate, Change
Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.
Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.
Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.
Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.
Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In today’s fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.