RDD2018 : Research is Key !

Feb 28 is Rare Disease Day ! Official video 2018

Research brings hope to the millions of people living with a rare disease across the world and their families. About RDD2018 theme.

The main objective of Rare Disease Day (RDD) is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives.

OrphaNet, portal for rare diseases and orphan drugs, includes the Diethylstilbestrol DES syndrome as rare disease ORPHA:1916.


How much do you know about DES?

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