… And that is where Empire Avenue, a social media platform, came in… … They found that missions could increase transactions, tweets, re-tweets, likes, and comments etc., across social platforms which in turn could help them achieve better ranking in keyword and search results and across other platforms. Furthermore, the mission exercise could not only help their cause, but also help them learn more and be better at social media… Read Social media “missions” extend reach for social causes by G. Gazin ; The Gadget Guy at Troy Media.
In the U.S. an estimated 5 to 10 million persons were exposed to Diethylstilbestrol; 740,000 in Australia, 300,000 in the UK, 160,000 in France and many more as DES was also prescribed in other countries such as the Netherlands, Ireland, South America, … If we did not have to consider many other factors such as age groups, location, etc., we could almost say that 1% of Facebook users have been exposed to DES… In today’s world of fast-paced communication, it does struck me that whilst so many people have been exposed yet very few people know about the DES drug tragedy. The good news is Facebook is changing this!
By offering a unique forum where DES daughters, sons, mothers and their family can connect and share their story, Facebook offers the opportunity to reach out to a wide audience of people thus spreading awareness of the damage this prescription drug and many others prescription drugs such as Thalidomide, Mediator, etc. have caused.
“I am so grateful to have found your Facebook page. I am a DES Daughter, diagnosed with CCA at the age of 17. I am celebrating my 42nd year of surviving this terrible cancer. (…) I pray each day for all those that have been affected or have to deal with issues that this travesty has caused. Thank you for providing a forum for education and support” – commented a DES daughter on my Facebook profile recently.
I’m glad more and more DES Action groups are using this platform to raise awareness about DES and help break the wall of silence around the DES health issues.
DES News via Facebook
Please find a list of Facebook groups and pages providing updates about the Diethylstilbestrol related issues as well as support for DES victims.
Technorati (with name coming from “Technology” and “Literati” – technological literature intelligence) is an Internet search engine for searching blogs and/or posts by tag or keyword. In addition to this, each of Technorati channels have a variety of feature columns that cover specific niches of the blogosphere and news.
BC is a blogger only social network and blog directory. BlogCatalog purpose is to help bloggers connect, share ideas, and grow through group and general discussions. BC also provides a variety of tools, features, and widgets to help bloggers. Blog sites are listed by category and can also be searched. Five are selected as top weblogs, along with a spotlight weblog.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness
DES Daughter Network is the little sister of Diethylstilbestrol, Journal of a DES Daughter but focuses on social media and social networking. The purpose of this blog is to share the latest DES news and updates from around the world as and when they are published all under one “roof”, one social media platform. It features and displays the social networks where DES groups and myself have a social media presence to further raise awareness of the DES cause and connect the dots between existing organizations.
Why a new blog?
Around the world, thousands, maybe millions of people are totally unaware that they were exposed to diethylstilbestrol (or DES), a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.
How do you reach out to these people? One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.
Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Twitter, Facebook, YouTube, Flickr are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.
The 4 “C’s of Social Media for the DES cause Connect, Contribute, Collaborate, Change
Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.
Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.
Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.
Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.
Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In today’s fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.
Did you know that you can create a toolbar for your website / blog that includes all of your own content and most visited sites? I didn’t but my husband did so when I told him I was spending a lot of time logging-in to my DES blogs, facebook, twitter and other social media accounts and finding the websites I visit on a daily basis, he kindly said to me “no worries, leave it with me and I’ll sort something out for you”.
I’m no expert but he is and as per magic and in no time he created a DES Awareness toolbar where I could easily in just one click have access to all my “DES stuff”. Many of you won’t need this but if like me you need to have access to all the great work DES advocates around the world are doing in just one click you may be interested in downloading and adding this Free DES Awareness Toolbar to your Bookmarks menu. Or you may decide to create your own customized toolbar. Here are some of the benefits:
The Alexa Toolbar Creator allows you to build a custom toolbar to help you connect with your visitors and increase traffic to your site. You can choose from a selection of features to add, including your logo, site search, custom menus, links to popular content on your site, and social networking. Also, by including dynamic headlines from blogs or other RSS/Atom feeds, you can message your customers in real time, wherever they are on the web. You can createAlexa toolbars for Internet Explorer and Firefox.
How easy is it to create a toolbar? It is relatively easy, but it’s even easier to download the FREE and handy DES Awareness Toolbar we’ve created for you.
The DES Awareness Toolbar features:
Menu button / drop down links to DES blogs / websites.
RSS Feed button / drop down links to DES posts.
Menu button / drop down links to DES on Facebook.
Menu button / drop down links to DES on Twitter.
Twitter Feed button / drop down links to DES tweets.
Menu button /drop down links to DES on Flickr.
Menu button / drop down links to DES on Google+.
Menu button / drop down links to DES on Pinterest.