Watch @DES_Journal diaporama and DES Info album on Flickr.
On February 22, 2011, US Senator John Kerry and US Senator Scott Brown received a 3-page response from the FDA, per their joint letter about a DES apology. The FDA’s letter did not contain an official apology from the federal government for the DES drug disaster. However, it acknowledged the devastating health consequences of DES, explained FDA initiatives to prevent future drug disasters, and talked about DES as a “tragedy“.
The FDA closed the letter by writing, “We hope that our new tools for identifying, monitoring and mitigating drug risks will prevent other tragedies like those brought out by the widespread use of DES. We are committed to providing the public with timely and accurate drug safety information and we recognize the critical responsibility that the FDA has to protect the safety of the public’s health“.
Thanks to DES Daughter Caitlin McCarthy suggestion tweet, DES and the transgenerational effects of endocrine disruptors made the list of the “97 issues you care about most” . John D. Sutter, a columnist for CNN Opinion, is now asking people to VOTE on what he will cover as part of the Change the List project. Grasp this opportunity to tell CNN you want more media coverage of the DES tragedy!
Read @CaitlinMcWriter Interview by @JessAinscough , 2013
In her interview, Caitlin McCarthy shares what she has learnt about this shocking and completely devastating case of medical negligence, and how it affects her life and the lives of many just like her. Caitlin anwers:
What is DES?
Why is DES described as one of the biggest medical disasters in history?
How is it that something like this – that so tragically affected millions of people – was allowed to happen? And why was it allowed to go on for so long?
What is her connection to DES and how does being a DES daughter affect her body, health and life today?
Is it possible that another medical disaster similar to this one could happen today? Are we any more protected?
What about her film, Wonder Drug …
Why she does what she does and why is it so important for her to spread this message?
” … It’s embarrassing for Lilly to say DES doesn’t cause breast cancer; that it’s all genetic… … It’s arrogant and insulting to people’s intelligence. We’re not going away. They can’t shut us up, so they’re going to have to deal with us. They will have to admit the truth. They need to accept responsibility. It’s not about the money for us, it’s about justice and recognition that those of us who have been affected by DES are hurt in a way people not affected by it don’t understand. ”
A scientific drama, currently in development. is the winner and nominee in over 20 international film festival screenplay competitions and labs (including the prestigious Hamptons Screenwriters Lab as an Alfred P. Sloan Foundation script). Set in Boston, Massachusetts, WONDER DRUG is inspired by the true story of the drug DES… WONDER DRUGWebsite – Twitter – Facebook .