I only felt half a woman

Europe plays Russian roulette with hormones

I only felt half a woman

said Myriam, a DES Daughter – victim from the DES hormone disorder – for the standaard, October 2017.
Image credit © Steve Michiels.

DES DiEthylStilbestrol Resources

La voie (d’action pour les victimes) contentieuse : longue, coûteuse et éprouvante

Intervention de Maître Martine Verdier, Avocate à la Cour d’Orléans

Vidéo (et texte) du colloque “Faut-il repenser le droit des victimes d’effets indésirables de médicaments ?“, (Mars 2015).

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Victimes de médicaments : sortir du déni sociétal

Intervention de Gérard Bapt, Député, Mars 2015

Allocution d’ouverture du colloque “Faut-il repenser le droit des victimes d’effets indésirables de médicaments ?“, (Mars 2015).

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Victimes d’effets indésirables graves du Distilbene DES : d’épreuves en épreuves

Intervention d’Emmanuelle Brun, Vice-présidente de Réseau DES France, Mars 2015

Vidéo (et texte) du colloque “Faut-il repenser le droit des victimes d’effets indésirables de médicaments ?“, (Mars 2015).

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Screening the Power of Empathy

All the creatures have stress… eventhough they don’t always know what is going on…

A tale about all the creatures in the world mourning and sitting around a scanner machine, watching a human-being getting scanned

DES DiEthylStilbestrol Resources

Stupid Cancer App Connects the DES Community Online

Requires iOS 10.0 or later. Compatible with iPhone, iPad, and iPod touch

A new smartphone app from the nonprofit Stupid Cancer gives the DES community a unique opportunity to seek support from others with DES exposure or cancer diagnosis.

The more DES-exposed individuals who use the app, the more valuable it is to everyone in the DES community.

After downloading the free, secure app (initially for Mac only), participants create a profile. By selecting the DES-exposed option in “What was your primary diagnosis?” individuals are instantly matched to others.

Originally shared via Your DES Action Monthly Email Alert!
Join DES Action USA.

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DES Explained (song) – from Beginning to End (pretty much)

By a DES GrandSon, 2014

by J. Soul – DES Explained
published on 1a Dec 2014 by TheMadScientist

  • Mad Scientist featured image credit wikipedia.
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Getting Your Period when you are a Young DES Daughter…

The Devastating Effects of a 1940s ‘Wonder Pill’ Haunt Women Generations Later

” In the throes of puberty,14-year-old Su Robotti had developed “humongous breasts,” but she was still waiting for what she really wanted: her period. The year was 1969, and Robotti was filled with anxiety as she watched her friends, one-by-one, come to school and report that they had begun menstruating. All the while, she kept quiet, agonizing over when she’d ruin her first pair of underwear. At times, she even considered lying about it, but nervous thoughts would always inevitably halt her—she couldn’t even pretend she knew what cramps felt like.

Robotti’s mother, who had gotten her period when she was 12, was less anxious and more worried. At her mother’s insistence, Robotti found herself reclining in a gynecological chair. She watched as a doctor massage her lower abdomen as part of an external pelvic exam, and then listened to him deliver the report to her mother: Her reproductive organs were infant-sized and she only had one working ovary.

“I just felt like I wasn’t enough,” remembers Robotti today. At 59 years old, Robotti still hasn’t gotten her first period—and she never will. Robotti is a “DES daughter, …”

… continue reading The Devastating Effects of a 1940s ‘Wonder Pill’ Haunt Women Generations Later by Amanda Arnold on broadly, JAN 5 2017.

DES DiEthylStilbestrol Resources

Above the Fog

A Life Journey with DES

above-the-fogAbove the Fog is a powerful story of one women’s struggle with DES (diethylstilbestrol).

The drug was developed in 1937 as the first synthetic estrogen. Millions of pregnant women who had previous miscarriages or premature births were given this drug in hopes of correcting the problem with their pregnancies.

Years later the tragic results started showing up in the daughters and later on in the sons – but the FDA did not contraindicated this drug until 1971 to all pregnant women.

This story is about one women, who never gave up in the face of her repeated health issues caused by DES or her family’s extraordinary health problems. She was determined to face the hard times with dignity and grace.

Author: Sue Carver, a wife, mother and grandmother based in Sequim Washington for the past 42 years.
Publisher: Outskirts Press, Inc.
Publication date:08/05/2016
Pages:230

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Débat : Scandales des médicaments, à qui la faute ?

Les lobbies pharmaceutiques sont-ils les seuls responsables?

Reportage diffusé sur France 2 le mercredi 16 novembre 2016.
Julian Bugier organise le débat.

Ecoutez les interventions de Tifenn, Réseau DES France:

  1. de 16:35 à 25:05,
  2. de 46:15 à 47:35,
  3. de 48:20 à 49:00.
Quelques Tweets…

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