Stop censoring photos of men and women who have undergone mastectomies
Congratulations on the victory of the petition asking Facebook to stop censoring photos of men and women who have undergone mastectomies! “We want the world to know breast cancer is not a pink ribbon – it is traumatic, it is life-changing, and it urgently needs a cure.” says Scorchy Barrington who launched the petition signed by more than 21,000 people.
The Group DES Info welcomes everyone from the DES community — Mothers, Daughters, Sons, 3rd Generation and Beyond, Transgender, and family and friends of DES-exposed — as well as those interested in learning more. The DES tragedy of in-utero exposure and its devastating effects on multiple generations must not be forgotten.
The medical community must receive education about the consequences of this treatment having gone awry in order to
know how to treat the DES exposed
continue to study the long term ramifications of DES exposure
prevent failures such as DES exposure from happening again.
In the U.S. an estimated 5 to 10 million persons were exposed to Diethylstilbestrol; 740,000 in Australia, 300,000 in the UK, 160,000 in France and many more as DES was also prescribed in other countries such as the Netherlands, Ireland, South America, … If we did not have to consider many other factors such as age groups, location, etc., we could almost say that 1% of Facebook users have been exposed to DES… In today’s world of fast-paced communication, it does struck me that whilst so many people have been exposed yet very few people know about the DES drug tragedy. The good news is Facebook is changing this!
By offering a unique forum where DES daughters, sons, mothers and their family can connect and share their story, Facebook offers the opportunity to reach out to a wide audience of people thus spreading awareness of the damage this prescription drug and many others prescription drugs such as Thalidomide, Mediator, etc. have caused.
“I am so grateful to have found your Facebook page. I am a DES Daughter, diagnosed with CCA at the age of 17. I am celebrating my 42nd year of surviving this terrible cancer. (…) I pray each day for all those that have been affected or have to deal with issues that this travesty has caused. Thank you for providing a forum for education and support” – commented a DES daughter on my Facebook profile recently.
I’m glad more and more DES Action groups are using this platform to raise awareness about DES and help break the wall of silence around the DES health issues.
DES News via Facebook
Please find a list of Facebook groups and pages providing updates about the Diethylstilbestrol related issues as well as support for DES victims.
Online Global DES Health History Survey Calling all DES Mothers, Daughters and Sons! Did you take part in the new 2012 Diethylstilbestrol health history survey created by DES Action USA and open to all DES-exposed individuals worldwide.
DES Daughters What is a DES Daughter? Who are they? Women born between 1938 and 1978, exposed to the anti miscarriage drug Diethylstilbestrol before birth (in the womb) are defined as DES Daughters.
DES Sons What is a DES Son? Who are they? Men born between 1938 and 1978, exposed to the anti miscarriage drug Diethylstilbestrol before birth (in the womb) are defined as DES Sons.
DES Action USA An estimated 5-10 million Americans were exposed to the anti-miscarriage drug diethylstilbestrol (DES). It has tragically caused cancers, infertility and other health problems. DES Action USA is the national nonprofit for those who were exposed.
DES Centrum Welkom DES-betrokkenen en medische professionals.
DES in Belgium DES in Belgium vzw heeft tot doel op te komen voor de belangen van DES-betrokkenen, slachtoffers van het medicijn Diëthylstilbestrol.
DES (Diethylstilbestrol) Info We welcome everyone from the DES community – Mothers, Daughters, Sons, 3rd Generation and Beyond, Transgender, and family and friends of DES-exposed – as well as those interested in learning more.
WONDER DRUG Scientific Drama currently at script stage inspired by the true story of DES (diethylstilbestrol), a toxic, carcinogenic drug seen as a medical miracle to help women with pregnancy issues and a cash cow for pharmaceutical companies upon its creation.