This story, that has been going on for 75 years begins with an infatuation for a “miraculous” drug supposed to, according to a theory and without scientific proof of effectiveness, reduce the pregnancy complications, especially the number of miscarriages.
The next steps are painful with the discovery during the seventies, for the in utero exposed daughters, of particular cancers (clear cells adenocarcinoma) of the uterus cervix or the vagina, then during the eighties infertility and pregnancy accidents.
This story is exemplary because it involves the different society actors whose roles will be analysed: health professionals, health authorities, patients associations, media and pharmaceutical companies.
We will propose lessons for the future.
With ResearchKit for iOS, Apple makes it much easier to join medical studies
With iOS 8, Apple introduced HealthKit, a powerful tool that allows health and fitness apps on iPhone to work together. Over 900 apps have already been developed using HealthKit, transforming how we track, manage, and interact with our health.
The biggest challenge in medical research is that it takes so long to organize the studies but what if it could be done at the click of a button? With a user’s consent, ResearchKit can seamlessly tap into the pool of useful data generated by HealthKit — like daily step counts, calorie use, and heart rates — making it accessible to medical researchers. With ResearchKit, iPhone and iPad users will be able to search and sign up for specific medical studies on everything from Parkinson’s disease to diabetes, asthma to breast cancer.
Sources and more information
Apple makes it easier to join medical studies, mnn, Mar 18, 2015.
The Next Disruptor of Clinical Trials? Try Apple, mmm, MARCH 11, 2015.
ResearchKit An “Enormous Opportunity” For Science, Says Breast Cancer Charity, techcrunch, 2015/03/14.
ResearchKit Technical Overview, apple, March 2015.