Finding Hope after Miscarriage…

A pregnancy loss is happening to 25% of all known pregnancies

Finding Hope After Miscarriage
Personal Stories

One year I was pregnant four times.
I was 38 and newly married. I got pregnant the first time in January.
A few weeks later, I miscarried. For every season of that year, I have a photo of me holding a pregnancy test with two pink lines marking positive. By summer my smile is tentative. Each pregnancy followed its own, idiosyncratic course. One ended gently, just days after a home test turned positive. Another hung on 10 weeks, the embryo’s heart stopping after we’d seen it pulsing during two previous ultrasounds. Another pregnancy my doctor tried to save by prescribing progesterone.
That only caused the little bundle of cells to cling to me too tenaciously, long after it stopped growing
…. ”

Continue reading Finding Hope After Miscarriage
by Kendra Hurley, Jan 10, 2013

Sadly for many DES daughters having their own children is not possible! Many of us who have experienced miscarriages, want to have kids but are struggling or unable to…

Our Guardian Angel Senator Lisa Boscola

Pregnancy Drug Guardian Angel

Pregnancy drug guardian angel
Pennsylvania State Senator Lisa Boscola

Pennsylvania Senator Lisa Boscola getting State help to research effects of  DES.
Sen. Boscola suspects the pregnancy drug her mother took played a role in her four miscarriages.
$250,000 in budget planned to hunt for answers.

Read Pregnancy Drug Guardian Angel
by  Yung Kim, May 19, 2000.

More DES DiEthylStilbestrol Resources

After Miscarrying I never got the Pregnant Glow back

We need to change the way miscarriage and pregnancy loss is handled outside of the medical community

After miscarrying I never got the Pregnant Glow back
Personal Stories

There is a fantasy surrounding pregnancy portraying it as a blissful state when women glow with health and the miracle of life. It is a time when most women feel pride in their bodies, more forgiving of their imperfections, and awestruck by their body’s capabilities. Yet, when a woman has experienced miscarriage and/or infertility, a pregnancy can be filled with fear and anxiety.

Continue reading After miscarrying I never got the Pregnant Glow back, by Erica Berman, PhD, HuffPost Living, November 2012

Sadly for many DES daughters having their own children is not possible! Many of us who have experienced miscarriages, want to have kids but are struggling or unable to…

Doctors must be sensitive to Women at Risk of Miscarriage and Ectopic Pregnancy, NICE report says

Ectopic pregnancy and miscarriage: diagnosis and initial management

Doctors must be sensitive to Women at Risk of Miscarriage and Ectopic Pregnancy, NICE report says
Doctors must be more sympathetic to pregnant women in danger of losing their babies, according to NICE

The National Institute for Health and Clinical Excellence believes doctors do not give enough information or support to women at risk of miscarriages or ectopic pregnancies. NICE says that the NHS should consider setting up dedicated services for pregnant women who may have an ectopic pregnancy or who experience pain or bleeding in their first trimester. This is according to their December 2012 guideline on the diagnosis and management of ectopic pregnancy and miscarriage in early pregnancy.

More information:

Sadly for many DES daughters having their own children is not possible! Many of us who have experienced miscarriages, want to have kids but are struggling or unable to…

No Matter when it happens, Loss of a Pregnancy can be devastating

We need to change the way miscarriage and pregnancy loss is handled outside of the medical community

No Matter when it happens, Loss of a Pregnancy can be devastating
Personal Stories

It is an event in my life that I will never forget. I woke up one morning and after four weeks of nausea, fatigue and strange cravings, I felt “normal,” which seemed wrong. Everyone reassured me there was no reason to worry. I’d seen a strong heartbeat at a six-week ultrasound, I’d had no cramping or bleeding, and it is normal for pregnancy symptoms to fluctuate. But I just knew in my gut something was wrong.”

Continue reading No Matter When it Happens,
Loss of a Pregnancy Can Be Devastating
by Erica Berman, PhD, HuffPost Healthy Living, July 2012

Sadly for many DES daughters having their own children is not possible! Many of us who have experienced miscarriages, want to have kids but are struggling or unable to…

Pregnancy or not : what is and is NOT appropriate to say to a Woman about her Body and/or Fertility

12 Things You Should Never Ask a Woman
Never ask any woman if she is pregnant…

Any woman struggling with infertility or who has experienced a miscarriage has probably had to deal with her fair share of stupid comments and reactions from others.

Erica Berman, PhD, thought she would put together a little “guide” regarding what is and is not appropriate to say to a woman about her body and/or fertility…

Read 12 Things You Should Never Ask a Woman
HuffPost Women, October 2012

Sadly for many DES daughters having their own children is not possible! Many of us who have experienced miscarriages, want to have kids but are struggling or unable to…

My IVF Treatments: losing our Baby, the Pain of a Miscarriage

We need to change the way miscarriage and pregnancy loss is handled outside of the medical community

Losing our baby: The pain of a miscarriage
Personal Stories

My name is Grace. I’ve been reading the personal stories on this site since last year, and when my partner Cara and I started IUI treatments with donor sperm 10 months ago, I thought I’d be writing in to share the news of my pregnancy. Sadly, the story that I am sharing is a different one. ”

Continue reading Losing our baby: The pain of a miscarriage
on MyFertilityChoices.com, Personal Stories – also on Twitter

Sadly for many DES daughters having their own children is not possible! Many of us who have experienced miscarriages, want to have kids but are struggling or unable to…

You’ve been exposed to DES in-utero, so what?

My DES Daughter journey: UK doctors

My DES Daughter Journey – DoctorsI read with interest your letter… This certainly raises the possibility that you have an abnormally shaped womb… This condition is in no way dangerous to your health… It is possible that this abnormality contributed to your recent miscarriage but it is equally possible that the problem was related to some developmental disturbance in the pregnancy itself… Before advising any treatment for this suspected abnormality I think we would need much more concrete evidence that it is contributing to miscarriage… ”

Read My DES Daughter Journey – Doctors.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (6)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Five Scary and Shocking Facts about Diethylstilbestrol
Drug companies ignored DES studies results, the FDA did NOT ban the DES drugs, it continued to be used and many new doctors don’t even know about Diethylstilbestrol.

Online Global DES Health History Survey
Calling all DES Mothers, Daughters and Sons!
Did you take part in the new 2012 Diethylstilbestrol health history survey created by DES Action USA and open to all DES-exposed individuals worldwide.

DES Daughters
What is a DES Daughter? Who are they?
Women born between 1938 and 1978, exposed to the anti miscarriage drug Diethylstilbestrol before birth (in the womb) are defined as DES Daughters.

DES Sons
What is a DES Son? Who are they?
Men born between 1938 and 1978, exposed to the anti miscarriage drug Diethylstilbestrol before birth (in the womb) are defined as DES Sons.

1000 Thanks to our 1000 Facebook Fans !
June 21th 2012 marks a Milestone in our efforts to raise awareness of the DES drug scandal and tragedy with 1000 Fans on Facebook.

More DES DiEthylStilbestrol Resources

NEW Global DES Health Survey gives a Voice to “Wonder Drug” Victims


DES Action Health History Survey

DES Action Australia-NSW Media Alert

Are you one of the 740,000 Australians at risk?

New global health survey gives a voice to those suffering effects of ‘wonder drug’ that devastated generations

Australians are being encouraged to take part in a landmark global health survey to help reveal the true impact of exposure to the anti-miscarriage drug, DES for DES Awareness Week (June 1 – 7). It is estimated up to 740,000 Australians are have been exposed to the drug, which was prescribed from 1940 – 1970 across the country.

“If you know, or even suspect that you, your mother or grandmother might have taken this drug – this is your chance to be part of a survey that will reveal what the real health impacts this drug has had on three generations of families,” says Carol Devine, DES Action Australia-NSW coordinator, herself a DES daughter.

The survey, by DES Action USA, will give Australians the opportunity to speak out about the health impact of their exposure, which includes cancer of the vagina, cervix or breast, birth complications and infertility.

Mrs Devine is hoping the survey will help answer many of the health questions plaguing the DES community.

“Our organisation has fielded hundreds of enquiries in response to DES Awareness Weeks from right across Australia and often we are asked if a particular health problem might be related to DES exposure and often the answer is – no one knows. By working with researchers in the USA we will be able to get some real answers, and know the proper healthcare to detect these conditions earlier and potentially save lives “says Devine.

Touted a “wonder drug” in its time, DES was prescribed to pregnant women between 1940 and 1971 (and sometimes beyond). It is now known to increase the risk of certain cancers and reproductive problems in those women prescribed DES and their children of that pregnancy.

Dr Jules Black, DES knowledgeable obstetrician and gynaecologist and medical spokesperson for the DES Action group in NSW, is urging women and men who may be DES exposed to be vigilant with their reproductive health – and take action.

“It is vital that people affected get the specialised health care they need. It is important that DES exposed women get the proper screenings to detect cancers early and women exposed to DES in the womb have “high risk” care for their pregnancies. Men exposed to DES in the womb, with increased risk of genital abnormalities, should do regular testicular self-checks and report anything unusual to a doctor, such as fertility or urogenital problems” he says.

June 15 is the deadline for this survey and Australians affected by DES can participate online at DES Action USA

There are many people affected by DES who may not be aware of the harm caused by DES and the health care they need. More information is available at DES Action Australia-NSW or by contacting them 02.98754820.

HEALTH CHECK LIST: If you tick ‘yes’ next to any of the following, ask your doctor about possible exposure to DES:

ü  Does your mother recall having previous miscarriages or being prescribed medications while pregnant? DES was most commonly prescribed to prevent miscarriage and for pregnancy complications such as bleeding. It was also known as “stilboestrol”.

ü  If unable to ask your mother, does your health history show a series of reproductive problems such as cancer, infertility, or miscarriages?

ü  Does your mother remember only being given “hormones” during pregnancy? It is worthwhile having a check-up, informing the doctor your mother was given hormones during pregnancy. Progesterone, another hormone, may have also been used to prevent miscarriage and research has shown no problems with this.

 -ENDS-

For more information, please contact:

DES Action Australia-NSW

DES Action USA