You’ve been exposed to DES in-utero, so what?

My DES Daughter journey: UK doctors

My DES Daughter Journey – DoctorsI read with interest your letter… This certainly raises the possibility that you have an abnormally shaped womb… This condition is in no way dangerous to your health… It is possible that this abnormality contributed to your recent miscarriage but it is equally possible that the problem was related to some developmental disturbance in the pregnancy itself… Before advising any treatment for this suspected abnormality I think we would need much more concrete evidence that it is contributing to miscarriage… ”

Read My DES Daughter Journey – Doctors.

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DES DiEthylStilbestrol Resources (6)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Five Scary and Shocking Facts about Diethylstilbestrol
Drug companies ignored DES studies results, the FDA did NOT ban the DES drugs, it continued to be used and many new doctors don’t even know about Diethylstilbestrol.

Online Global DES Health History Survey
Calling all DES Mothers, Daughters and Sons!
Did you take part in the new 2012 Diethylstilbestrol health history survey created by DES Action USA and open to all DES-exposed individuals worldwide.

DES Daughters
What is a DES Daughter? Who are they?
Women born between 1938 and 1978, exposed to the anti miscarriage drug Diethylstilbestrol before birth (in the womb) are defined as DES Daughters.

DES Sons
What is a DES Son? Who are they?
Men born between 1938 and 1978, exposed to the anti miscarriage drug Diethylstilbestrol before birth (in the womb) are defined as DES Sons.

1000 Thanks to our 1000 Facebook Fans !
June 21th 2012 marks a Milestone in our efforts to raise awareness of the DES drug scandal and tragedy with 1000 Fans on Facebook.

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NEW Global DES Health Survey gives a Voice to “Wonder Drug” Victims

DES Action Health History Survey

DES Action Australia-NSW Media Alert

Are you one of the 740,000 Australians at risk?

New global health survey gives a voice to those suffering effects of ‘wonder drug’ that devastated generations

Australians are being encouraged to take part in a landmark global health survey to help reveal the true impact of exposure to the anti-miscarriage drug, DES for DES Awareness Week (June 1 – 7). It is estimated up to 740,000 Australians are have been exposed to the drug, which was prescribed from 1940 – 1970 across the country.

“If you know, or even suspect that you, your mother or grandmother might have taken this drug – this is your chance to be part of a survey that will reveal what the real health impacts this drug has had on three generations of families,” says Carol Devine, DES Action Australia-NSW coordinator, herself a DES daughter.

The survey, by DES Action USA, will give Australians the opportunity to speak out about the health impact of their exposure, which includes cancer of the vagina, cervix or breast, birth complications and infertility.

Mrs Devine is hoping the survey will help answer many of the health questions plaguing the DES community.

“Our organisation has fielded hundreds of enquiries in response to DES Awareness Weeks from right across Australia and often we are asked if a particular health problem might be related to DES exposure and often the answer is – no one knows. By working with researchers in the USA we will be able to get some real answers, and know the proper healthcare to detect these conditions earlier and potentially save lives “says Devine.

Touted a “wonder drug” in its time, DES was prescribed to pregnant women between 1940 and 1971 (and sometimes beyond). It is now known to increase the risk of certain cancers and reproductive problems in those women prescribed DES and their children of that pregnancy.

Dr Jules Black, DES knowledgeable obstetrician and gynaecologist and medical spokesperson for the DES Action group in NSW, is urging women and men who may be DES exposed to be vigilant with their reproductive health – and take action.

“It is vital that people affected get the specialised health care they need. It is important that DES exposed women get the proper screenings to detect cancers early and women exposed to DES in the womb have “high risk” care for their pregnancies. Men exposed to DES in the womb, with increased risk of genital abnormalities, should do regular testicular self-checks and report anything unusual to a doctor, such as fertility or urogenital problems” he says.

June 15 is the deadline for this survey and Australians affected by DES can participate online at DES Action USA

There are many people affected by DES who may not be aware of the harm caused by DES and the health care they need. More information is available at DES Action Australia-NSW or by contacting them 02.98754820.

HEALTH CHECK LIST: If you tick ‘yes’ next to any of the following, ask your doctor about possible exposure to DES:

ü  Does your mother recall having previous miscarriages or being prescribed medications while pregnant? DES was most commonly prescribed to prevent miscarriage and for pregnancy complications such as bleeding. It was also known as “stilboestrol”.

ü  If unable to ask your mother, does your health history show a series of reproductive problems such as cancer, infertility, or miscarriages?

ü  Does your mother remember only being given “hormones” during pregnancy? It is worthwhile having a check-up, informing the doctor your mother was given hormones during pregnancy. Progesterone, another hormone, may have also been used to prevent miscarriage and research has shown no problems with this.


For more information, please contact:

DES Action Australia-NSW

DES Action USA

DES DiEthylStilbestrol Resources (2)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
My DES Daughter Journey – Introduction
The journey started with a miscarriage and an operation. Now my DES journey is taking a new start with my Diethylstilbestrol “Journal of a DES Daughter”.

My DES Daughter Journey – Doctors
I have been exposed to DES but doctors needed more evidence to accept that diethylstilboestrol had contributed to my miscarriage.

The FDA is lying by omission
M. Henderson (US FDA) and C. McCarthy (screenwriter) communication about the health benefits of limiting the use of DES diethylstilbestrol in pregnancy.

International Women’s Day March 2011
Attend Journal of a DES Daughter International Women’s Day event on Facebook. Celebrate the courage of women affected by diethylstilbestrol.

French study reveals more damaging DES side effects
Link between DES and mental illness issues revealed by a recent study conducted by M.O. Gobillard-Soyer, former director at the CNRS.

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