Join Now @JoTrust #SmearForSmear social media campaign

Reminding people of the importance of smear tests by sharing your lipstick smear selfie for Cervical Cancer Prevention Week

What is #SmearForSmear?

SmearForSmear campaign image
With #SmearForSmear we want you to remind people of the importance of smear tests by sharing your lipstick smear selfie for Cervical Cancer Prevention Week #CCPW.

Smear tests (cervical screening) save 5,000 lives a year yet one in five women who are eligible to attend do not take up their invitation.
For young women aged 25-29 this rises to one in three.
#SmearForSmear allows you to remind people of the importance of smear tests by sharing your lipstick smear selfie and nominating your friends to do the same.

Together we can help prevent cervical cancer.

  1. Put on your lipstick.
  2. Smear your lipstick and take a selfie.
  3. Use #SmearForSmear and @JoTrust then nominate a friend.
  4. Share your selfie on social media.
  5. Text ‘CCPW01 £3‘ to 70070 to donate now and support jostrust work. Or donate online.
More information
  • Results for #SmearForSmear on Twitter. JoTrust campaign page.
  • Cervical cancer: Charity urges women to post messy lipstick selfies to promote smear tests, independent, 25 January 2015.
  • #SmearForSmear: Charity urges public to join smeared lipstick selfies campaign to fight cervical cancer, itv, 25 January 2015.
  • Social Media Campaign To Fight Cervical Cancer, news.sky, 26 January 2015.
  • ARE SMEARED LIPSTICK SELFIES THE NEW ICE BUCKET CHALLENGE?, Elle, JAN 27, 2015.

FDA proposes Social Media Guidelines for Drug and Medical Device Industry

FDA Issues Draft Guidances for Industry on Social Media and Internet Communications About Medical Products: Designed with Patients in Mind

The BMJ logo
The U.S. FDA issued proposed guidelines for the pharmaceutical and medical device industries for posting information on social media networks and correcting misinformation posted by others.

The US Food and Drug Administration has issued a first guidance for drug and medical device companies to use when posting information about products on internet platforms with strict limits on the number of characters allowed.

Such platforms would include the microblogging site Twitter, which limits posts to 140 characters, and the sponsored links that appear with Google and Yahoo search results.

In the case of drugs, for example, the FDA said that such posts should include the brand and chemical name of the drug, and, if the post makes a claim of benefit, must also present the drug’s most serious risks.

The presentation of risks and benefits should be balanced and should be included in the same message, the FDA said. For example, a 134 character “tweet” on Twitter for a hypothetical memory loss drug called “rememberine hydrochloride,” marketed under the brand name “NoFocus,” might read: “NoFocus (rememberine HCl) for mild to moderate memory loss—may cause seizures in patients with a seizure disorder www. nofocus.com/risk.”

The FDA said, “In the above example, benefit information for NoFocus is accurate and non-misleading, and the most serious risks associated with NoFocus are communicated together with the benefit information within the tweet.”

Sponsored links on Google allow for a URL of up to 35 characters, with an additional 70 characters of explanatory text. In addition to the main link the listing may have six additional links to related information, called “Sitelinks.” Each of these Sitelinks must be 25 characters maximum and may be accompanied by an additional 35 characters of text.

As an example of an appropriate sponsored link the FDA created “ouchafol,” a hypothetical drug for severe headaches associated with traumatic brain injury, marketed as “Headhurtz.” The package insert for this hypothetical drug included a boxed warning about potential brain swelling, as well as warnings about fatal drug reactions and life threatening drops in heart rate. In this case, the FDA said, the main sponsored link might read: “Headhurtz (ouchafol)” with the link www. headhurtz.com, accompanied by the text “For severe headache from traumatic brain injury.”

The main link would then have four related Sitelinks below it, each taking readers to web pages with risk information—in this case: a “Boxed Warning” link with the text “Potential for brain swelling,” a second “Warning” link with the text “Potentially fatal drug reaction,” another “Warning” link with the text “Life threatening drop in heart rate,” and a fourth “Risk information” link with the text “Important safety information.”

The FDA commented, “If a firm concludes that adequate benefit and risk information, as well as other required information, cannot all be communicated within the same character space limited communication, then the firm should reconsider using that platform for the intended promotional message.”

A second guidance document from the FDA2 provided advice to drug and device companies that voluntarily decide to correct misinformation posted about their products—positive or negative—by an independent third party who is not under the company’s control or influence. Such corrective communications, the FDA said, should address the misinformation but should be limited to the misinformation, be “non-promotional in nature, tone, and presentation,” consistent with FDA’s required labeling of the product, and disclose that the person providing the corrective information is affiliated with the firm.

“FDA does not expect firms to submit corrections to the agency when correcting misinformation pursuant to this draft guidance; however, FDA recommends that firms keep records to assist in responding to questions that may come from the agency,” the guidance said.

Both guidance documents are open for public comment for 90 days.

Sources:

  • US drug regulator proposes social media guidelines for drug and medical device industry, BMJ 2014;348:g4135, 19 June 2014
  • FDA Issues Draft Guidances for Industry on Social Media and Internet Communications About Medical Products: Designed with Patients in Mind, FDA Voice, June 17, 2014

Eight Twitter Tips for Health-related Events

Eight Tips for using Twitter effectively

8_Twitter_tips_for_WorldCancerDay infographics
Eight Twitter Tips for Health-related Events

Download a useful infographic to use Twitter around health-related events effectively:

1. Remember, they’re following YOU
2. Be their ears and eyes too
3. Use the event hashtag
4. Be original
5. No time like the present
6. Quote of the day…
7. A picture, a thousand words etc
8. Be a Twitter advocate

Sources: World Cancer Day 2014 Social Media and PDF

All our posts tagged cancerinfographicsWorld Cancer Day 2014.

On Flickr®

The Healthcare Hashtag Project

An awesome, very useful Twitter tool…

Why the Healthcare Hashtag Project?
Learn, engage and contribute to the Healthcare Hashtag Project

Objective:The goal of the Healthcare Hashtag Project by @symplur is to make the use of healthcare social media and Twitter more accessible for the healthcare community as a whole. By lowering the learning curve of Twitter with a database of relevant hashtags to follow, Symplur hope to help new and existing users alike to find the conversations that are of interest and importance.

Why the Healthcare Hashtag Project?

  • DISCOVER WHERE THE HEALTHCARE CONVERSATIONS ARE TAKING PLACE
  • DISCOVER WHO TO FOLLOW WITHIN YOUR SPECIALTY OR DISEASE
  • DISCOVER THE BEST FROM CONFERENCES IN REAL-TIME OR IN ARCHIVE
DiEthilStilbestrol hashtags
#diethylstilbestrol hashtag influencers and engagers

What can you find?

Contribute to The Healthcare Hashtag Project:

  1. Authenticate with Twitter
  2. Select Hashtag Type
  3. Enter Information and Submit

#FACSaware on Twitter, fast and simple way to get Fetal Anti Convulsant Syndromes “breaking” News

Get FACS “breaking” News via Twitter

Twitter, an Information Network

Twitter, the fastest, simplest way to stay close to everything you care about...Twitter is a real-time information network that connects you to the latest stories, ideas, opinions and breaking news about what you find interesting. Simply select the accounts you find most compelling and follow the conversations. At the heart of Twitter are small bursts of information called Tweets
Each Tweet is 140 characters long maximum, but don’t let the small size fool you—you can discover a lot in a little space.
You can see photos, videos and conversations directly in Tweets…

Get Value from Twitter without sending Tweets

You don’t have to build a web page to surf the web, and you don’t have to tweet to enjoy Twitter. Whether you tweet a lot or never, you have access to the voices and information surrounding all your interests. You can contribute, or just listen in and retrieve your breaking news.

Get FACS “breaking” News via Twitter

Please find a list of Twitter accounts providing updates about the Fetal Anti Convulsant Syndromes related issues Follow DES_Journal

Connect with your DES Daughter via klear to explore and discover the Twitter World

klear: find influencers that are relevant and reachable

Connect with your DES Daughter via @twtrland to explore and discover the Twitter World
Connect with your DES Daughter via @klear_com, explore, discover the Twitter World

klear visualizes social footprints to help you discover new people, understand their impact and find better ways to connect and increase your social media network

  • Impact: Activity, Amplification and Outreach quantified by objective measurements.
  • Network: Followers distribution, close connections and engagement stats show who’s listening on the other side of the screen.
  • Content Breakdown: The Best and Recent of a user’s content breakdown shows who he really is, from first hand.
  • Discovery: It’s a new way to search the twitter graph.

FAQs – Keyword Tracker –  Connect with your DES Daughter

#FF @DESActionUSA @DESInfo411 @KMFDallas @DESAustraliaNSW @DES_Journal @grneyd5600 @Royallgal @WONDERDRUGMOVIE

FollowFriday is a tweeps ranking based on the #followfriday recommendations

What is #FollowFriday?

Have you seen a tweet including #FollowFriday or #FF  and a list of user names preceded by the @ symbol? This tradition was born spontaneously within the Twitter community to recommend your favourite tweeps to your followers. Follow Friday is a way people recommend their followers in their tweets to other followers to follow on twitter – on Fridays…
Get DES “breaking” News via Twitter

Get DES “breaking” News via Twitter

DES on Twitter, the fastest, simplest way to stay close to everything you care about…

Twitter, an information network

Twitter, the fastest, simplest way to stay close to everything you care about...Twitter is a real-time information network that connects you to the latest stories, ideas, opinions and breaking news about what you find interesting. Simply select the accounts you find most compelling and follow the conversations. At the heart of Twitter are small bursts of information called Tweets
Each Tweet is 140 characters long maximum, but don’t let the small size fool you—you can discover a lot in a little space.
You can see photos, videos and conversations directly in Tweets…

You don’t have to tweet to get Value from Twitter

You don’t have to build a web page to surf the web, and you don’t have to tweet to enjoy Twitter. Whether you tweet a lot or never, you have access to the voices and information surrounding all your interests.
You can contribute, or just listen in and retrieve your breaking news.

Get DES “breaking” News via Twitter

Please find a list of Twitter accounts providing updates about the Diethylstilbestrol related issues Follow DES_Journal

DES Journal on Twitter

fb_profile
Follow @DES_Journal on Twitter.
DES Daughter Network: 

Learn about Diethylstilbestrol, Distilbène, DES Daughters, DES Sons and worldwide DES drug health issues including cancer.

DES DiEthylStilbestrol Resources

DES Centrum NL on Twitter

@DEScentrum joined Twitter June 2011

DES Centrum NL on TwitterFollow @DESCentrum on Twitter

Wij behartigen de belangen van alle generaties die zijn blootgesteld aan DES, ofwel diethylstilbestrol. Wij zijn hét kenniscentrum op het gebied van DES.

Website: DES Centrum NL