DES Action Australia-NSW on Twitter

Follow @DESAustraliaNSW

DES Action Australia-NSW on Twitter
Follow @DESAustraliaNSW on Twitter

Follow Carol Devine @DESAustraliaNSW on Twitter

DES Action Australia-NSW is a support and advocacy group for those who know or suspect exposure to the anti-miscarriage drug DES diethylstilboestrol

Website: DES Action Australia-NSW

More DES DiEthylStilbestrol Resources

DES Info

The Group DES Info welcomes everyone from the DES community — Mothers, Daughters, Sons, 3rd Generation and Beyond, Transgender, and family and friends of DES-exposed — as well as those interested in learning more. The DES tragedy of in-utero exposure and its devastating effects on multiple generations must not be forgotten.

The medical community must receive education about the consequences of this treatment having gone awry in order to

  1. know how to treat the DES exposed
  2. continue to study the long term ramifications of DES exposure
  3. prevent failures such as DES exposure from happening again.

Like DES Info on Facebook, follow DES Info on Twitter.

Twitter accounts to follow

DES Daughter : @des_journal
Twitter : Welcome to DES Daughter Journal on Twitter. Learn more about #diethylstilbestrol #DES #distilbene #DESdaughters #DESsons.
Follow @des_journal for DES awareness.

DES Info : @DESInfo411
Twitter : The DES tragedy of in-utero exposure and its devastating effects on multiple generations must not be forgotten.

WONDER DRUG is a scientific drama about DES, the world’s first drug disaster.

Caitlin McCarthy : @CaitlinMcWriter
Twitter : Official Twitter page for award-winning screenwriter Caitlin McCarthy. ‘Do or do not. There is no try.’ – Yoda.

Dr.Sara DETOX : @DrSaraDETOX
Twitter : Dr. Sara is a highly skilled Naturopathic Doctor and Master Homeopathic Clinician, and is a well known expert in detoxification, weight loss and anti-aging.

Dial Doctors : @dialdoctors
Twitter : 24/7/365 On Call Doctors, Consultations by Phone/Email + Dental, Vision & Prescription Plan. Affordable Health Benefits for America.

Jerry Wollaston : @JerryWollaston
Twitter : Promises Made-Promises Kept I wrote -I Said I Will- to remember the good times. I wrote to come to grips with the bad times. I wrote to fulfill a promise.

Karen Fernandes : @KMFDallas
Twitter : Karen Fernandes has been a nurse for over thirty years and is founder and president of AYR Consulting Group.

Why a new DES blog ?

To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness

image of a dandelion
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.

DES Daughter Network is the little sister of Diethylstilbestrol, Journal of a DES Daughter but focuses on social media and social networking. The purpose of this blog is to share the latest DES news and updates from around the world as and when they are published all under one “roof”, one social media platform. It features and displays the social networks where DES groups and myself have a social media presence to further raise awareness of the DES cause and connect the dots between existing organizations.

Why a new blog?

Around the world, thousands, maybe millions of people are totally unaware that they were exposed to diethylstilbestrol (or DES), a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.

How do you reach out to these people?  One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.

Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Twitter, Facebook, YouTube, Flickr are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.

To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.

The 4 “C’s of Social Media for the DES cause
Connect, Contribute, Collaborate, Change

  • Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.
  • Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.
  • Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.
  • Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.

Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In today’s fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.

More DES DiEthylStilbestrol Resources

Free DES Awareness Toolbar

Did you know that you can create a toolbar for your website / blog that includes all of your own content and most visited sites? I didn’t but my husband did so when I told him I was spending a lot of time logging-in to my DES blogs, facebook, twitter and other social media accounts and finding the websites I visit on a daily basis, he kindly said to me “no worries, leave it with me and I’ll sort something out for you”.

Get our toolbar !

I’m no expert but he is and as per magic and in no time he created a DES Awareness toolbar where I could easily in just one click have access to all my “DES stuff”. Many of you won’t need this but if like me you need to have access to all the great work DES advocates around the world are doing in just one click you may be interested in downloading and adding this Free DES Awareness Toolbar to your Bookmarks menu. Or you may decide to create your own customized toolbar. Here are some of the benefits:

Get our toolbar !  The Alexa Toolbar Creator allows you to build a custom toolbar to help you connect with your visitors and increase traffic to your site. You can choose from a selection of features to add, including your logo, site search, custom menus, links to popular content on your site, and social networking. Also, by including dynamic headlines from blogs or other RSS/Atom feeds, you can message your customers in real time, wherever they are on the web. You can create Alexa toolbars for Internet Explorer and Firefox.

How easy is it to create a toolbar? It is relatively easy, but it’s even easier to download the FREE and handy DES Awareness Toolbar we’ve created for you.

The DES Awareness Toolbar features:

  •  Menu button / drop down links to DES blogs / websites.
  •  RSS Feed button / drop down links to DES posts.
  •  Menu button / drop down links to DES on Facebook.
  •  Menu button / drop down links to DES on Twitter.
  •  Twitter Feed button / drop down links to DES tweets.
  •  Menu button /drop down links to DES on Flickr.
  •  Menu button / drop down links to DES on Google+.
  •  Menu button / drop down links to DES on Pinterest.
  •  Menubutton / drop down links to DES on
  •  Menu button / drop down links to DES on YouTube.

After download, follow the instructions and it will install in seconds. Contact us if you need any assistance. We hope that you will find our DES Awareness toolbar useful as much as we do.