Dr. Robert Hoover, director of NCI’s Epidemiology and Biostatistics Programme, discusses a new study of diethylstilbestrol (DES), a drug once prescribed to pregnant women. Dr. Hoover describes the history behind DES and the long-term health effects that are now known to be associated with prenatal exposure to the drug. A written article about the study appears in the NCI DES follow-up study.
YouTube DiEthylStilboestrol’s Channel : “vital désir” , la bande annonce YouTube : 2010.10 “Florence, une jeune femme de 38 ans est victime d’une fausse-couche au 6ème moi de sa grossesse. Le résultat de son hystérogrpahie révèle une malformation. La cause serait le Ditalmide: un médicament sensé prévenir les fausses couches, interdit aux Etats-Unis dès 1971 et, en France, seulement 6 ans plus tard“.
YouTube DiEthylStilboestrol’s Channel : Distilbène®, un scandale médical toujours d’actualité YouTube : 2010.06 “Le 19 novembre 2010 se tient au Sénat un colloque sur le Distilbène®, ce médicament prescrit jusqu’en 1977 aux femmes ayant des problèmes de fécondité et qui a provoqué des cancers et malformations génitales chez leurs descendants. Nous recevons le gynécologue Michel Tournaire, ancien chef de service de la maternité de l’hôpital Saint-Vincent-de-Paul à Paris“.
YouTube DiEthylStilboestrol’s Channel : Le combat de victimes du médicament “Distilbène®” YouTube : 2009.11 “Jusqu’en 1977, les médecins en France ont prescrit massivement du Distilbène® aux femmes enceintes pour éviter les fausses couches. Ce médicament était en fait très dangereux pour les enfants nés de ces grossesses. Jeudi, la Cour de cassation doit se prononcer sur une affaire concernant deux femmes, exposées in utero au médicament, et atteintes de cancers. Des “filles Distilbène®” témoignent“.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness
DES Daughter Network is the little sister of Diethylstilbestrol, Journal of a DES Daughter but focuses on social media and social networking. The purpose of this blog is to share the latest DES news and updates from around the world as and when they are published all under one “roof”, one social media platform. It features and displays the social networks where DES groups and myself have a social media presence to further raise awareness of the DES cause and connect the dots between existing organizations.
Why a new blog?
Around the world, thousands, maybe millions of people are totally unaware that they were exposed to diethylstilbestrol (or DES), a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.
How do you reach out to these people? One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.
Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Twitter, Facebook, YouTube, Flickr are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.
The 4 “C’s of Social Media for the DES cause Connect, Contribute, Collaborate, Change
Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.
Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.
Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.
Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.
Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In today’s fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.
Did you know that you can create a toolbar for your website / blog that includes all of your own content and most visited sites? I didn’t but my husband did so when I told him I was spending a lot of time logging-in to my DES blogs, facebook, twitter and other social media accounts and finding the websites I visit on a daily basis, he kindly said to me “no worries, leave it with me and I’ll sort something out for you”.
I’m no expert but he is and as per magic and in no time he created a DES Awareness toolbar where I could easily in just one click have access to all my “DES stuff”. Many of you won’t need this but if like me you need to have access to all the great work DES advocates around the world are doing in just one click you may be interested in downloading and adding this Free DES Awareness Toolbar to your Bookmarks menu. Or you may decide to create your own customized toolbar. Here are some of the benefits:
The Alexa Toolbar Creator allows you to build a custom toolbar to help you connect with your visitors and increase traffic to your site. You can choose from a selection of features to add, including your logo, site search, custom menus, links to popular content on your site, and social networking. Also, by including dynamic headlines from blogs or other RSS/Atom feeds, you can message your customers in real time, wherever they are on the web. You can createAlexa toolbars for Internet Explorer and Firefox.
How easy is it to create a toolbar? It is relatively easy, but it’s even easier to download the FREE and handy DES Awareness Toolbar we’ve created for you.
The DES Awareness Toolbar features:
Menu button / drop down links to DES blogs / websites.
RSS Feed button / drop down links to DES posts.
Menu button / drop down links to DES on Facebook.
Menu button / drop down links to DES on Twitter.
Twitter Feed button / drop down links to DES tweets.
Menu button /drop down links to DES on Flickr.
Menu button / drop down links to DES on Google+.
Menu button / drop down links to DES on Pinterest.