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Diethylstilbestrol, Journal of a DES Daughter
Updates for DES mothers, daughters and sons, their families, and anyone interested in the Di-ethyl Stilbestrol® worldwide tragedy.

Association Réseau DES France victimes du Distilbène
Informer les professionnels de la santé mais surtout les victimes du Distilbène®.

DES Action USA
An estimated 5-10 million Americans were exposed to the anti-miscarriage drug diethylstilbestrol (DES). It has tragically caused cancers, infertility and other health problems. DES Action USA is the national nonprofit for those who were exposed.

DES Centrum
Welkom DES-betrokkenen en medische professionals.

DES in Belgium
DES in Belgium vzw heeft tot doel op te komen voor de belangen van
DES-betrokkenen, slachtoffers van het medicijn Diëthylstilbestrol.

DES (Diethylstilbestrol) Info
We welcome everyone from the DES community – Mothers, Daughters, Sons, 3rd Generation and Beyond, Transgender, and family and friends of DES-exposed – as well as those interested in learning more.

WONDER DRUG
Scientific Drama currently at script stage inspired by the true story of DES (diethylstilbestrol), a toxic, carcinogenic drug seen as a medical miracle to help women with pregnancy issues and a cash cow for pharmaceutical companies upon its creation.

More DES DiEthylStilbestrol Resources

Twitter accounts to follow

DES Daughter : @des_journal
Twitter : Welcome to DES Daughter Journal on Twitter. Learn more about #diethylstilbestrol #DES #distilbene #DESdaughters #DESsons.
Follow @des_journal for DES awareness.

DES Info : @DESInfo411
Twitter : The DES tragedy of in-utero exposure and its devastating effects on multiple generations must not be forgotten.

WONDER DRUG Movie : @WONDERDRUGMOVIE
WONDER DRUG is a scientific drama about DES, the world’s first drug disaster.

Caitlin McCarthy : @CaitlinMcWriter
Twitter : Official Twitter page for award-winning screenwriter Caitlin McCarthy. ‘Do or do not. There is no try.’ – Yoda.

Dr.Sara DETOX : @DrSaraDETOX
Twitter : Dr. Sara is a highly skilled Naturopathic Doctor and Master Homeopathic Clinician, and is a well known expert in detoxification, weight loss and anti-aging.

Dial Doctors : @dialdoctors
Twitter : 24/7/365 On Call Doctors, Consultations by Phone/Email + Dental, Vision & Prescription Plan. Affordable Health Benefits for America.

Jerry Wollaston : @JerryWollaston
Twitter : Promises Made-Promises Kept I wrote -I Said I Will- to remember the good times. I wrote to come to grips with the bad times. I wrote to fulfill a promise.

Karen Fernandes : @KMFDallas
Twitter : Karen Fernandes has been a nurse for over thirty years and is founder and president of AYR Consulting Group.

DES DiEthylStilbestrol Resources (5)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
New AFSSAPS DES survey and update
DES historical facts, current issues, risks associated with DES exposure, breast cancer risks, post adolescent psychiatric disorders, risks for the 3rd generation, DES pregnancy care.

DES Sons Numbers and Health Concerns
Although less is known about the consequences of diethylstilbestrol exposure in men than in women, important DES health concerns have been identified.

DES Sons Studies
The most common reported health issues in DES sons studies are epididymal cysts, testicular problems, testicular cancer, infertility, psychological and neurological effects.

Gender Identity and DES Exposure
Dr. Dana Beyer radio interview on the significant evidence linking prenatal Diethylstilbestrol DES exposure with gender identity and transsexual development.

Historic DES Breast Cancer Court Cases
Boston Federal Courthouse holds the first DES Breast Cancer court cases on behalf of 53 DES Daughters September 07-23 2011.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (4)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
DES Cancer Link 40th Anniversary
Guest post from DES Daughter and WONDER DRUG screenwriter Caitlin McCarthy; DES cancer link 40th anniversary triggers a flurry of press coverage.

DES National Public Education Campaigns
Carol Devine radio interview on the silence around the DES issue and the difficulties to push for a DES National Education Campaign.

Can the Mediator scandal lead to justice for drug victims ?
Massive media coverage of Mediator drug scandal is parallel to the silence surrounding DES exposure but could lead to justice for drug victims.

Victory for a DES 3rd generation victim : the pharmaceutical company condemned
First 3rd generation DES Distilbène® court case. Justice is made for the victims Louis and his mother Helene. UCB Pharma is condemned.

Distilbène®: 20 Years of Legal Battle
First Distilbène® lawsuits, first victories for DES daughters, historical turning point and first victory for DES third generation against UCB Pharma.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (3)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Diethylstilbestrol DES

DES, Guilt, Fear, and other Emotions
Review of the emotions including anger, anxiety, fear, frustration and guilt felt by most diethylstilbestrol DES victims.

DES Activist outside USA
Carol Devine, Founder and Coordinator of DES Action Australia-NSW, highlights the difficulties for a DES activist to access information outside USA.

DES and Breast Cancer Risks
Are DES daughters at higher risk of Breast Cancer? What is the NHS approach in UK and what are the prevention measures?

Wanted: DES Aware Doctors
Please contact your local DES Action Group if you know a sensitive, aware doctor that you would recommend to DES victims.

DES (Diethylstilbestrol) Symposium May 2011
Find Location, Time, Speakers & Programme of May 2011 DES Symposium held in Boston U.S.A.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (2)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
My DES Daughter Journey – Introduction
The journey started with a miscarriage and an operation. Now my DES journey is taking a new start with my Diethylstilbestrol “Journal of a DES Daughter”.

My DES Daughter Journey – Doctors
I have been exposed to DES but doctors needed more evidence to accept that diethylstilboestrol had contributed to my miscarriage.

The FDA is lying by omission
M. Henderson (US FDA) and C. McCarthy (screenwriter) communication about the health benefits of limiting the use of DES diethylstilbestrol in pregnancy.

International Women’s Day March 2011
Attend Journal of a DES Daughter International Women’s Day event on Facebook. Celebrate the courage of women affected by diethylstilbestrol.

French study reveals more damaging DES side effects
Link between DES and mental illness issues revealed by a recent study conducted by M.O. Gobillard-Soyer, former director at the CNRS.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (1)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Diethylstilbestrol DES
Journal of a DES daughter on Di-Ethyl Stilbestrol® (or diethylstilboestrol in UK). Sources DES action groups, DES exposure, DES pregnancy & DES media information.

DES Exposure
Diethylstilbestrol exposure may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES exposure.

DES Side Effects
Diethylstilbestrol side effects may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES side effects.

DES Pregnancy
Diethylstilbestrol side effects are frightening, but here is a message of hope to all DES daughters living a DES pregnancy.

Distilbene® Drug
Despite warnings to discontinue using DES in pregnancy, Distilbène® continued to be prescribed to pregnant women in France until 1977.

More DES DiEthylStilbestrol Resources

YouTube DES Videos in French (2)

Liste de vidéos sur le Distilbène DES en français, sur YouTube

YouTube DiEthylStilboestrol’s Channel : Utérus en T
YouTube : 2010.11 “Diaporama Constance Lanxade de Champris, présenté dans “Le couffin de l’héritage”, La Schola Cantorum, Paris, 19 novembre 2010, Réseau DES France“.

YouTube DiEthylStilboestrol’s Channel : “vital désir” , la bande annonce
YouTube : 2010.10 “Florence, une jeune femme de 38 ans est victime d’une fausse-couche au 6ème moi de sa grossesse. Le résultat de son hystérogrpahie révèle une malformation. La cause serait le Ditalmide: un médicament sensé prévenir les fausses couches, interdit aux Etats-Unis dès 1971 et, en France, seulement 6 ans plus tard“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, un scandale médical toujours d’actualité
YouTube : 2010.06 “Le 19 novembre 2010 se tient au Sénat un colloque sur le Distilbène®, ce médicament prescrit jusqu’en 1977 aux femmes ayant des problèmes de fécondité et qui a provoqué des cancers et malformations génitales chez leurs descendants. Nous recevons le gynécologue Michel Tournaire, ancien chef de service de la maternité de l’hôpital Saint-Vincent-de-Paul à Paris“.

YouTube DiEthylStilboestrol’s Channel : Le Distilbène®
YouTube : 2010.06 “Le Distilbène®“.

YouTube DiEthylStilboestrol’s Channel : Scandale Distilbène®
YouTube : 2010.01 “Scandale Distilbène®“.

YouTube DiEthylStilboestrol’s Channel : Le combat de victimes du médicament “Distilbène®”
YouTube : 2009.11 “Jusqu’en 1977, les médecins en France ont prescrit massivement du Distilbène® aux femmes enceintes pour éviter les fausses couches. Ce médicament était en fait très dangereux pour les enfants nés de ces grossesses. Jeudi, la Cour de cassation doit se prononcer sur une affaire concernant deux femmes, exposées in utero au médicament, et atteintes de cancers. Des “filles Distilbène®” témoignent“.

YouTube DiEthylStilboestrol’s Channel : Les “filles Distilbène®” remportent une victoire face aux labos
YouTube : 2009.11 “Les “Filles Distilbène®“, atteintes d’un cancer à cause d’une hormone de synthèse, ont remporté une victoire en cassation face aux laboratoires, qui devront désormais prouver que leur produit n’était pas en cause“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, colloque international
YouTube : 2009. “Quatre victimes du Distilbène® témoignent lors d’un colloque international et partagent ce qui motive leur combat“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, effets secondaires et victimes
YouTube : 1980. “Interview (fin des années 80) d’une famille victime des effets secondaires dévastateurs du Distilbène®“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, avis de médecins
YouTube : 1980. “Interview (début des années 80) montrant les positions de 2 médecins au sujet du Distilbène®“.

Le Distilbène DES, en savoir plus

YouTube DES Videos in French (1)

Liste de vidéos sur le Distilbène DES en français, sur YouTube

YouTube DiEthylStilboestrol’s Channel => All DES Videos in French
Vidéos en langue française sur le Distilbène® DES (grid view).

YouTube DiEthylStilboestrol’s Channel : Distilbène®, hormone de croissance: critique des médecins
2011.07 “C Dans L’air – médicaments : le grand inventaire“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(1)
2011.06 “Début du colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°1 de 6). Distilbène-Médiator: l’histoire se répète (Dr Irène Frachon). Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(2)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°2 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(3)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°3 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(4)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°4 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(5)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°5 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène® & Médiator, deux époques, deux scandales(6)
2011.06 “Intervention de Maître Martine Verdier durant le colloque tenu à l’Assemblée Nationale de Paris en Juin 2011 (N°6 de 6). Quels recours pour les victimes: le parcours judiciaire. Images: Steph Draperi“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®: un petit-fils handicapé obtient réparation en appel
2011.06 “Le petit-fils d’une femme ayant pris du Distilbène® a obtenu jeudi 9 juin de la cour d’appel de Versailles la reconnaissance d’un lien entre ce médicament et son handicap et le versement d’1,7 million d’euros de dommages et intérêts, a indiqué son avocate, Me Martine Verdier“.

YouTube DiEthylStilboestrol’s Channel : Distilbène®, effets psychiatriques – Rapport Hhorages 2011
2011.06 “Rapport d’une étude française sur les effets psychiatriques potentiels du Distilbène®, publié par l’association Hhorages en mars 2011“.

Le Distilbène DES, en savoir plus

YouTube DES Videos in English

The story of the multi generations DiEthylStilbestrol tragedy in videos

YouTube DiEthylStilboestrol’s Channel – Arthur L Herbst, MD – 40th Anniversary of DES Paper
2011. “Commemorating Arthur L Herbst and the 40th Anniversary of His Landmark DES Paper“.

YouTube DiEthylStilboestrol’s Channel – WCVB-TV “Chronicle” Segment on DES Diethylstilbestrol
2011. “February 18, 2011–WCVB-TV Boston’s newsmagazine “Chronicle” interviewed longtime DES activist/DES historian Andrea Goldstein, DES Daughter and “Wonder Drug” screenwriter Caitlin McCarthy, and DES researcher Dr. Julie Palmer for its segment on DES (diethylstilbestrol)“.

YouTube DiEthylStilboestrol’s Channel – DES concerns: The next generation
2011. “DES has consequences for those who took it, their children and maybe their grandchildren“.

YouTube DiEthylStilboestrol’s Channel – Caitlin McCarthy of Wonder Drug at 2010 AOF Fest
2010. “Meet the incredibly talented Caitlin McCarthy, author of the fantastic screenplay WONDER DRUG from her Award Winning appearance at the 2010 AOF Festival in Pasadena CA 2010. The multi-award winning writer talks about her work in this interview“.

YouTube DiEthylStilboestrol’s Channel – Hearing DES Daughters
2010. “IES113Hearing DES DAUGHTERS“.

YouTube DiEthylStilboestrol’s Channel – New Cervical Cancer Screening Guidelines
2009. “Women at increased risk have a higher chance of getting cervical cancer than women at average risk. Women at increased risk include those who have: Diethylstilbestrol (DES) exposure before birth“.

YouTube DiEthylStilboestrol’s Channel – Question on Ectopic Pregnancies
2009. “AN ECTOPIC PREGNANCY IS SERIOUS: CONSULT YOUR DOCTOR. Answering the Question for DprJones“.

More DES DiEthylStilbestrol Resources